Minkous
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Hey guys,
I am posting because I feel like my peers on this forum may be of more help than my doctors have offered thus far. I am a 27 yr old male. From what we know I starte having seizures almost 2 years ago. I started having a tonic colonic every other month. Then randomly I had a day where my dad had to revive me 3 times with CPR and I ended up having 18 seizures. After that things went back to a seizure every couple months... And we searched for answers from doctors and neurologists. They did the MRI and 48 hr EEG with 6 questionable areas in the test. They also claimed that I may be having psuedo seizures. So we have booked an appt next week for a month long study at Emory University's Epilepsy Center. My reason for coming to y'all, is that I've been having a lot of tics in my cheek wen I go out in the sun, and I have been bouncing my feet really bad for several months and never thought anything of it but my parents notice and always yell at me for bouncing my feet at church and in the car. And lately whenever I sit down to relax or lay down to sleep I will get random twitches in say my right butt cheek, then my elbow, then maybe it will jump to my calf, or my toes will curl up. The whole twitching episodes have been somewhat manageable by really making an effort to stop bouncing my legs but I have to really think about it and tense up my leg muscles to get it to stop. And seems like it's getting progressively worse over the past 2 weeks. I am reaching out for some help. From my research I am thinking I may be having myoclonic seizures to go with my provlem of TC's. What do you think.... Frustrated without a diagnosis?
I am posting because I feel like my peers on this forum may be of more help than my doctors have offered thus far. I am a 27 yr old male. From what we know I starte having seizures almost 2 years ago. I started having a tonic colonic every other month. Then randomly I had a day where my dad had to revive me 3 times with CPR and I ended up having 18 seizures. After that things went back to a seizure every couple months... And we searched for answers from doctors and neurologists. They did the MRI and 48 hr EEG with 6 questionable areas in the test. They also claimed that I may be having psuedo seizures. So we have booked an appt next week for a month long study at Emory University's Epilepsy Center. My reason for coming to y'all, is that I've been having a lot of tics in my cheek wen I go out in the sun, and I have been bouncing my feet really bad for several months and never thought anything of it but my parents notice and always yell at me for bouncing my feet at church and in the car. And lately whenever I sit down to relax or lay down to sleep I will get random twitches in say my right butt cheek, then my elbow, then maybe it will jump to my calf, or my toes will curl up. The whole twitching episodes have been somewhat manageable by really making an effort to stop bouncing my legs but I have to really think about it and tense up my leg muscles to get it to stop. And seems like it's getting progressively worse over the past 2 weeks. I am reaching out for some help. From my research I am thinking I may be having myoclonic seizures to go with my provlem of TC's. What do you think.... Frustrated without a diagnosis?