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View Poll Results: Which AEDs gave you the worst side effects?
Depakote / Valproate/Valproic Acid/Divalproex Sodium 118 26.11%
Dilantin / Phenytoin 90 19.91%
Keppra / Levetiracetam 137 30.31%
Lamictal / Lamotrigine 87 19.25%
Neurontin / Gabapentin 32 7.08%
Phenobarbital 45 9.96%
Tegretol / Carbamazepine 79 17.48%
Topamax / Topiramate 85 18.81%
Trileptal / Oxcarbazepine 38 8.41%
Zonegran / Zonisamide 36 7.96%
Multiple Choice Poll. Voters: 452. You may not vote on this poll

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  #341  
Old 06-18-2014, 04:51 PM
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I am on only VimPat. I was on Keppra which was very bad for my attitude. I was aggressive and mean on Keppra. Now I am just confused and forgetful. I think it must be an individual thing. I have to remind myself to be "self policing" about side effects.

Thanks everyone here, this is a helpful forum.
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  #342  
Old 06-24-2014, 10:31 PM
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Depakote made me gain. Topamax made me so dopey my husband calls it dopamax. Banzel made me straight edge crazy.

I'm on heavy doses of keppra, vimpat and zonegran now. I mostly fight off sleepy when I can remember what day it is, if I'm not busy worrying about who is following me. Ugh.
Loved carbatrol and lamictal, but after a few years they stopped loving me back.
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  #343  
Old 06-25-2014, 01:29 AM
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I've only been on a few different anti-epileptic drugs but Tegretol was by far the worst for side effects.
-Excessive bruising
-Disorientation
-Dizziness and general clumsiness
-Trouble with blood clotting, found that one out the hard way after getting two cartilage piercings and trying in vain to stop the bleeding for over an hour.
-Feeling like everything was moving in slow motion
-Severe headaches

Has anyone found that they get shortness of breath on either Lamactal or Tegretol? I'm trying to work out if the meds are causing it or not.

Last edited by jenagade; 06-25-2014 at 01:38 AM.
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  #344  
Old 08-09-2014, 06:46 AM
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I voted Tegretol (Carbamazepine) but it was actually Tegretol with Epilim (Sodium Valporate)
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  #345  
Old 08-09-2014, 01:40 PM
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I've only been on Lamictal and valproate, but valproate was terrible. I gained weight, was lethargic, grew body hair in places I'd never had it before, and was scared by the risk of PCOS.
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  #346  
Old 08-12-2014, 11:43 PM
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I really wonder is Depakote doesn't just slowly sterilize people. I'm infertile and have been to the best hospital's in the country. They can't find a cause. But I've been on anti-epileptic drug's for 28 years now.
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  #347  
Old 09-07-2014, 12:51 AM
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Dilantin made me lose vision and equilibrium for a while. And I'm starting to feel tingly I've been on my tablet too long. Talk later
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  #348  
Old 04-08-2015, 07:39 PM
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Keppra (still on it) makes me irritable.
Depakaote, made my hair fall out and lost weight.
Zonegran, made me really lose weight, looked like a skeleton
Topamax, made me STUPID!
Lamictal, I walked like I was drunk! lol
Lyrica, out of all these was the worst for me, made me gain weight and had suicidal thoughts.
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  #349  
Old 04-22-2015, 05:10 PM
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Originally Posted by RunningGirl85 View Post:
Lamictal seems to be the only that really likes me. And fortunately, it also works pretty well. I've also been on Keppra, Depakote, and Vimpat. I didn't mind the side effects of Vimpat as much, but it also didn't seem to be doing much.
I know everyone is different,so effects experienced by one person will not be the same for another, but I've considered Lamictal as a possible alternative to Keppra. My concerns things I've heard about like hair loss, weight gain, eye issues, and feeling "out of it."

Notice any of these issues with Lamictal?


BTW, this poll might be more useful if there was a way to determine what percentage of the time a certain med is prescribed nowadays. Some may show up as a bigger problem simply because of a higher usage rate..

Last edited by Dignan; 04-22-2015 at 05:15 PM.
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  #350  
Old 04-23-2015, 03:19 AM
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I got a pair of new eyes .I love this Lady,I hate Depakote. I take vimpat.She is Changing a lot of my meds. Her name is Laura Gerserterwits. She has a great sense of humor'
g
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  #351  
Old 06-06-2015, 09:57 PM
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I can't tolerate the side effects of neurontin. I didn't take for seizures, I took it for nerve pain. I was actually having un-DX'ed seizures at the time I was taking it.
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  #352  
Old 06-06-2015, 10:19 PM
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What specific side effects drove you away from Neurontin? Curious as it is a drug I used to take as well.
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  #353  
Old 06-07-2015, 08:00 AM
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Originally Posted by Dignan View Post:
What specific side effects drove you away from Neurontin? Curious as it is a drug I used to take as well.
I would do things that I would have no memory of. I would drive somewhere (maybe 15 miles) and know I drove but have absolutely no recall on the drive. It made me zoombie like but also angry. It removed my filter and nearly got me fired. It was a great sleeping med so occasionally I would take one at night for sleep after I decided not to take them any longer. Beside the fact that at the only dose I managed to get to did not help my nerve pain.

Thankfully all my pain went away after back surgery, so I got out of pain management and didn't have to be concerned with that doctor trying to force neurontin on my any longer. NowI have a neurologist trying to force it on me. I flat out refuse to ever try the stuff again.

Different people have different reacting. My sister took it and loved it.

I'm on lamictial and I like it. Few side effects, and although it doesn't completely control the simple partials it has reduced them, and there is still room to increase my dose.

I tried Keppra but am allergic to it.
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  #354  
Old 06-07-2015, 09:34 AM
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When I was 6 years old, I was diagnosed with E. The doctor put me on Dilantin. I broke out in a rash. I got sicker and sicker. My Mother rushed me to the Children's Hospital at San Francisco, CA. My parents were told that I was going to die.

I had Steven's-Johnson Syndrome.

My sister took Dilantin and did well with her epilepsy.
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  #355  
Old 11-09-2015, 12:48 PM
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Lamotrigine worsened my seizures. Valproate was pretty rough, but lamotrigine worsened my seizures. I'm surprised that so few people said pheno. It's always been rumoured to be the most vicious anti-epileptic drug.
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  #356  
Old 11-16-2015, 12:49 PM
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Originally Posted by ilexa margareta View Post:
Lamotrigine worsened my seizures. Valproate was pretty rough, but lamotrigine worsened my seizures. I'm surprised that so few people said pheno. It's always been rumoured to be the most vicious anti-epileptic drug.
I do well on Lamictal (Lamotrigine). I am allergic to Valproate.

You are right about pheno. I was real sick when I was on that one. It was vicious.
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  #357  
Old 03-25-2016, 03:59 PM
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keppra.

i take -

keppra
tegtrol
vimpat
toppmax
klonapin


nothing touches keppra. makes you nutcase crazy.......or for me it does.

tegtrol sinks your testosterone production if your a male at a hi dose.

vimpat - tired, but im an imsominac so its odd for me.

toppmax - lost 22lbs, if your female it may be nice but i try to stay 220lbs ( lift weights, eat lots of cals, etc )

klonapin or clonazpin (same dam drug) its a benzo, nothing really. but your body will get use to the effect/dose after a while and you will need more and more if you want it to really control things.

more of a side drug + sleep helper.
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  #358  
Old 03-25-2016, 07:34 PM
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Here is the simplest way to list it for me:

Dilantin: Wife was a dental hygenist and as soon as she started noticing the puffy gums she told me to get off of it;

Tegretol: Seemed to work great. I had muscle twitches or jerking. Suddenly my therapudic levels started to drop without changing doseage and it was starting to throw my electrolytes out of wack;

Lamotrigine: It seems to be working good except the following issues: experiencing some shoulder joint pain, sleep patterns appear to be out of wack, slight cognative issues, memory issues (just thought of another side effect and I forgot what it was) and the last one that just popped in my head is the lack of normal emotion. My wife hates it when something happens between us and she ask me how I feel nothng much comes out of it for emotion. Just had a trip to Israel and people asked if I was excited. Its not that I wasn't looking forward to it but I didn't have anything bubbling out of me saying "I just can't contain myself because I'm so excited". Everything seems to flow into the next event. It just seems like my emotion regulation isn't really working much, too much indifference in too many situations.
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  #359  
Old 04-14-2016, 12:17 AM
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Does anyone have problems talking to themselves or know of someone who does taking Keppra?
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  #360  
Old 04-14-2016, 07:17 PM
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Originally Posted by Lind View Post:
Does anyone have problems talking to themselves or know of someone who does taking Keppra?
I have 9 cats (6 in 3 out) so I never talk to myself
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