advice

  1. S

    Help!!!Kids and family living with epilepsy, how to help them cope?

    My kids are 4 & 6 years old and since January they have seen 3 of my TC seizures, the first two being nocturnal, which scared the hell out of them because they thought o had turned into a zombie. The last being a daytime one, where there was a lot of blood again with the scary sounds. They both...
  2. Intothatendlessblue

    Carbamazepin disposal...

    Hello all, It's been a long year and, unfortunately, a long time since I've been able post and check in with everyone. I've been traveling in the Middle East and didn't always have reliable internet or a computer, but I'm back in the states and now dealing with changes made while I was...
  3. J

    Advice, tips, and referrals

    I just started dating the most amazing girl and she just so happens to have epilepsy. It doesn't bother me and I've spoken to her about it before. She tends to kinda brush off the details though a bit and I just want to make sure I'm well informed of what she has to deal with. She says her...
  4. sah313

    Aphasia, hormones, epilepsy... I need advice!

    Hi everyone, I am in need of a bit of advice. The neurology dept at my local hospital has been closed down and referral to the nearest one will take 3months so i need the expert advise of you good and knowledgeable people. I have been on max dose of keppra for over 9 months now and its...
  5. JLogefeil

    What Should My Plan Be?

    Most of the time I'm by myself at home. I tried talking to my hubby about what I should do if I feel like I m going to have a seizure or if I have one what do I do (If i remember at that time)? But he never wants to talk about it or just says "well u haven't had really any big problems when I m...
  6. Aaleayha

    Help with side effects

    So I'm starting this off by asking for help with extreme thirst and cotton mouth. I'm drinking too much water in one day to try and quench it. And I can't ignore it because it hurts, physically, when I get thirsty. How do I get rid of this?
  7. Madurai

    I just had my first seizure, please help.

    I'm a 18 year old male, I don't think it was a severe one... but I'm really scared, before the seizure I had'nt slept much, I had stayed up all night with minor sleep for two days, then I went out with my friends and walked around, I finally slept after I got back from hanging out with my...
  8. P

    What inspired you to join this forum?

    Was it because of your epilepsy? Was it through the advice of a doctor, friend or loved one? Were you googling "support groups" or forums for epilepsy? Or were you trying to help another person with a disability?
  9. W

    Need advice please

    My flatmate has epilepsy and is a frequent fitter, and I’m worried about how he’s dealing with it. He’s been epileptic since he was a teenager (he's now 23) and says he’s never managed to find any medication that works. He also has a problem where his shoulders both dislocate when he fits which...
  10. B

    Hello, my name is Blake and I had a seizure...

    I have only had a single seizure, and it has been over a month ago. From what I can tell, I had a Tonic-clonic seizure. It hit me from out of nowhere. I was just watching television, relaxing, and began convulsing. My friend was with me and said it lasted maybe a minute. I don't remember...
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