felbamate

  1. Matthew74

    Anyone on Felbatol / Felbamate?

    I'm increasing my dose of Felbatol, unfortunately I'm also getting up before dawn for work, trying to sleep when I get home (sometime around 11AM-2PM), and I'm really depressed. My seizures have also changed. Since I got out of the EMU I'm having a new kind of seizure, but less overall. It's...
  2. T

    doctors appt and new diagnosis

    tj went to the doctor this morning and we got a new diagnosis. our doctor changed his diagnosis from LGS to Doose syndrome. because he shows very little developmental delays that are commonly seen in LGS patients. while i am very glad that he might not have LGS (i say might becuase this is his...
  3. T

    felbamate vs. VNS help please!!!!!

    i need to make a decision on what i want to put my 4yr old son on...... they both have ups and downs to them...... here are the pros and cons for both and then please let me know what you think!!! felbamate pro- 1. 50%-50% of being seizure free con- 2. can develope permanant and fatal side...
  4. N

    New here Is there any one out there who is on felbamate?

    Hi There, I will introduce my self. I am a mother of five children ages 10, 9, 8, 6, and 3. My daughter, Kendra who is nine was born absence seizures. She at one point was having 100 plus a day. The story is very long so I will keep it short. We are today down to 5 to 15 a week. I thank...
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