tj went to the doctor this morning and we got a new diagnosis. our doctor changed his diagnosis from LGS to Doose syndrome. because he shows very little developmental delays that are commonly seen in LGS patients. while i am very glad that he might not have LGS (i say might becuase this is his fourth diagnosis in 10months) i dont really know that much about doose syndrome and what i could find on the internet was vague. the prognosis ranges wildly, and they talk about "remission" like cancer patients. does that mean it can come and go? will he out grow it and be fine? will he get worse? we started felbamate, its been two weeks and while i have seen some improvement, it isnt any better then the other meds that he was on and once she increased them he got worse not better, and today she wants me to increase his felbamate. so now i am nervous. he had a tonic clonic yesterday and while the drops are getting better and the jerks are getting better the tonic clonics have started making their presence known more. ( the same thing happened when he was on trileptal) it just seems like everytime we go to the doctor something new comes up and i spend hours on the net trying to find answers. and i get nothing.................