Hi all,
I was diagnosed as having JME when I was 13 when I had a large grand-mal seizure induced by flickering lights on a TV. Seizures have always been brought on by flickering light, and I'm particularly prone when I'm tired, stressed or low in blood sugar. I've been on sodium valproate for about 15 years now and it's controlling the seizures really well, but I have been told not to have a family as the valproate will cause neural tube defects. My neurologist was really dismissive and said that was my only option. I disagree - there's usually a way round everything, right? (Incidentally, he does not have epilepsy, I asked him!)
Does anyone know of any other AEDs for JME that I could investigate being switched onto from the valproate, so I could start a family? I can't just take this one person's rushed opinion as gospel!
Thanks ...
Kate
I was diagnosed as having JME when I was 13 when I had a large grand-mal seizure induced by flickering lights on a TV. Seizures have always been brought on by flickering light, and I'm particularly prone when I'm tired, stressed or low in blood sugar. I've been on sodium valproate for about 15 years now and it's controlling the seizures really well, but I have been told not to have a family as the valproate will cause neural tube defects. My neurologist was really dismissive and said that was my only option. I disagree - there's usually a way round everything, right? (Incidentally, he does not have epilepsy, I asked him!)
Does anyone know of any other AEDs for JME that I could investigate being switched onto from the valproate, so I could start a family? I can't just take this one person's rushed opinion as gospel!
Thanks ...
Kate