jme

  1. J

    What should I eat before a seizure?

    Hi, I was wondering if anyone had any thoughts on what I should eat after I have an aura which very often precedes a grand mal seizure. I am 25 and had my JME partially controlled (3-4 months no seizures generally) in the past. However, this last year it has gotten much worse. I have moved...
  2. A

    Refractory Epilepsy (JME) and other strange symptoms

    Greetings All, New here. Some background: My son was diagnosed with absence seizures when he was about 16. He probably began having them @ age 12 unbeknownst to us. We thought he was just daydreaming as he was always an A student. He was tested after the myoclonic jerks began. Two years later...
  3. S

    Have you found any alcohol that doesn't provoke seizures or do you just avoid it?

    I'm meeting a close friend tomorrow for the first time in the year. She only knew me pre-whatever-the-heck-is-wrong-with-me*, when I could drink alcohol like it was water. I am not planning on getting black-out drunk, I don't plan on getting remotely "tipsy" but I would like to just have one...
  4. D

    JME questions and epileptoligist recommendation for michigan area

    Hi all, My daughter has had JME for three years without much success. She's been pretty controlled, a grand mal striking every time she gets close to 6 month mark. I'm overwhelmed with how she is going to handle college. Her jerks have become more prevalent in the late afternoon interfering...
  5. T

    Just saying hey!

    Hi there community! :hello: Here's how my story goes: I'm 18 and I've been recently diagnosed (recently as in.. two days ago) with JME. I was hospitalized after a grand mal seizure (hopefully the only one I'll ever have), but had myoclonic jerks for about two years now (I didn't pay much...
  6. T

    Anyone else experince back pain couple years after epilepsy

    I have had epilepsy for about 2 1/2 years now but after the first year(my junior yr.) I started having extreme back pain. I had a x-ray done and the doctors said it was sclerosis. They put me on hydrocodon for pain but it just doesn't help. I thought it might be related to my epilepsy. Anyone...
  7. T

    Ummm....hi??

    Hi! I'm need here....of course. I was diagnosed with Juvenile Myoclonic Epilepsy at the age 1. I had a friend come over one night and of course, we stayed up til around 3-4. Doesn't seem badd right? Well the next morning I had woke up and had myoclonic jerks. Not knowing what they I just...
  8. B

    Hello all! New to this site :)

    Hey everyone, This is the first online support site I have joined for my epilepsy and I've had a diagnosis for over ten years! Talk about behind in the times LOL, I stumbled upon some of the forums through Google and though this is a great way to talk to others with similar life struggles. I...
  9. L

    Thinking about reducing meds - Epilim's driving me crazy!

    Hi everyone, This is my first message here. I've been feeling really hopeless and bitter about things lately and it's hard for my family to understand why I can't just snap out of it and think positive. Don't get me wrong they couldn't be more supportive but they don't know how mixed up...
  10. J

    Jme

    Hi, new to the forums. My partner suffers from JME. Recently she's been having bad shakes/twitches in her arms and whole body - I'm worried these will escalate. I've done some research and apparently taking a magnesium supliment and drinking plenty of water can help curve the twitching, does...
  11. G

    Yet Another Newbie!- Vimpat and Low Blood Sugar

    Hi my name is Katy, I have had JME (Juvenile Myolconic Epilepsy) for the past 6 years, if you aren't familiar with it basically it means I have 3 types of seizures- grand mal, absence, and myoclonic jerks. The first medication that they put me on was Keppra which caused be to go crazy so I am...
  12. M

    Hi, I'm new and it'd be great to speak to people who know what's going on

    Morning, My name is Mark and I've joined this forum because it seems to be good at understanding and giving helpful answers. My history is: I'm on 6 seizures now. I had one at the back end of 09 and one in mid 2010 followed by a 2 year break and I've had 4 (plus some mornings of myoclonic...
  13. BritishGuy

    Degradation of Fine Motor Skills

    I'm taking 1000mg of Keppra and 300mg of Lyrica twice a day for JME. I've noticed over the last 6 weeks or so (it's when I started these new dosage levels) that my motor skills are starting to degrade. My seizures had already started to get stronger and more frequent (which is ultimately what...
  14. BritishGuy

    Introduction

    Hey there, I thought I'd go ahead and make a forum post to introduce myself since I had started to browse around on the forums. I was diagnosed with JME in November 2011. Although the dx is new, the condition is not. I started having spasms in my neck, shoulders and upper arms around the age...
  15. S

    I'm New To The Epilepsy Form

    Hi Everyone, I hope I'm doing this right as I too have never belonged to this type of thing before. I started having seizsures when I was 19. I'm now a 23 year old that was diagnosed (approx. at the age of 21) with Juvenile Myoclonic Epilepsy. I have full-blown Tonic Clonic Seizures and I am...
  16. T

    Newbie

    Hi! Two days ago I was diagnosed with JME after having my second grand mal seizure. The first one took place 4 years ago when I was in college after a night of partying and was mistaken for dehydration. I have had myclonic jerks since I was in high school, but thought they were normal and...
  17. G

    Junior Myoclonic Epilepsy

    Hey, I'm 18 and was diagnosed with Junior Myoclonic Epilepsy and I have reached a conclusion that this is not one of the worse types of epilepsy. I have yet to have a real seizure, so all I have really had are tiny jerks like early in the morning when i wake up. Im now taking Depakote. I was...
  18. brain

    JUVENILE & MYOCLONIC SEIZURES aka JME EPILEPSY including Lennox-Gastaut

    JUVENILE & MYOCLONIC SEIZURES AKA JME EPILEPSY including Lennox-Gastaut Here are some partial quotes: JME / MYOCOLINIC SEIZURES - from eMed MYOCLONIC SEIZURES - Epilepsy Foundation JME, MYOCLONIC, LENNOX-GASTAUT SEIZURES by Epilepsy.com Feel free to bring about any discussion as...
  19. C

    Myoclonic Epilepsy

    Hey all! Anyone have myoclonic epilepsy? Juvenile or Progressive? My neuro is still narrowing down what I have. I have no history of epilepsy until age 33, and I was adopted, so no known family histoy. It's a waiting game for now. Any stories to share? Thanks! -Calley
  20. K

    AEDs for Juvenile Myoclonic Epilepsy

    Hi all, I was diagnosed as having JME when I was 13 when I had a large grand-mal seizure induced by flickering lights on a TV. Seizures have always been brought on by flickering light, and I'm particularly prone when I'm tired, stressed or low in blood sugar. I've been on sodium valproate for...
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