tinathesingergirl
Stalwart
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I was DX'd at the age of 34.
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I was diagnosed at age 32 (one year ago in May). After having my first TC, the ER doctor discovered a cavernous malformation that was supposedly the cause but 10 months after the removal and increased episodes of various types of seizures, I'm beginning to believe that I have probably had some type of seizure all my life but no one realized that's what it was. Sure would of been nice to have known back when I was getting in so much trouble at school for not paying attention.
They started in my late 20s. It may sound strange, but in some ways I envy those who have had it since you were children. You've had a chance to get used to it (somewhat) and to choose a career based on it.
I was diagnosed in my mid-30s, and it can wreck a career and heavily interfere with starting over in a new one.
I'd have to agree with you on that, not that it's any easier for those that were diagnosed at a younger age. They still have to cope. But to be settled in your life and career without it and then just out of nowhere it hits and everything gets turned upside down...that's hard to handle. Its also hard to understand and except at an older age as well, i think anyways. I'm a phlebotomist, I draw blood all day. I was so determined that I could continue in my job but between the shakes and the emotional side effects, I am now on a personal leave of absence and most likely will lose my job one way or the other. Had I been diagnosed as a child, I probably wouldn't of chose this kind of career.
I'd have to agree with you on that...
seizures (that I know of) haven't been nearly as distracting at work as this website has for me
:e:
Lol I hear you Peter, CWP is a big distraction, and I love it.
I was diagnosed with E at age 25 (after two grand mals), though simple partials actually started at 16 but went misdiagnosed until I was 30 as PTSD.
I was diagnosed less than a month ago and am 31.
I've also thought that late onset is tougher. I was already between jobs before dx but now I'm not sure what to do.
how old are you now?
33. 18 years right about now actually since my first (and utterly terrifying) simple partial. !*@#!* HATE THEM.
simple partials must have their own uh... special magic (ugh) about them - at least when I've had my (known) seizures I've been unconscious, so it's obvious to anyone around
Well I can't speak for those who suffer from motor-symptom S.Ps but coming from the psychic department where it's constant fear and deja vu (in my case after so many years the deja vu is usually 'haven't I had a partial this scary before?'), and tho it lasts less than a minute, the fear is gripping and terrifying.
Yeah, sign me up.