age at diagnosis? anyone over the age of 35 when diagnosed?

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I was diagnosed at age 32 (one year ago in May). After having my first TC, the ER doctor discovered a cavernous malformation that was supposedly the cause but 10 months after the removal and increased episodes of various types of seizures, I'm beginning to believe that I have probably had some type of seizure all my life but no one realized that's what it was. Sure would of been nice to have known back when I was getting in so much trouble at school for not paying attention.
 
I started having simple partial seizures when I was about 11. I was diagnosed when I was about 15 by a Pediatric Neurologist, but he didn't suggest meds or say that they might get worse. So eventually they started getting worse and worse until one generalized into a TC when I was almost 19. That's when I got a new neurologist and started on meds. It's taken a while but they're mostly under control now with my meds. It's been about 11 years now that I've been on meds.
 
They started in my late 20s. It may sound strange, but in some ways I envy those who have had it since you were children. You've had a chance to get used to it (somewhat) and to choose a career based on it.

I was diagnosed in my mid-30s, and it can wreck a career and heavily interfere with starting over in a new one.
 
I was diagnosed at age 32 (one year ago in May). After having my first TC, the ER doctor discovered a cavernous malformation that was supposedly the cause but 10 months after the removal and increased episodes of various types of seizures, I'm beginning to believe that I have probably had some type of seizure all my life but no one realized that's what it was. Sure would of been nice to have known back when I was getting in so much trouble at school for not paying attention.


glad to see someone else having considered the same thing I have... :ponder:
 
well, tally so far:

18 months

years:
26
45
46
38
23
32
40
39
34
13
34
32
44
15
late 20s


this gives me a bit of relief
I'd thought for quite some time that my later age diagnosis classified me somehow, aberrant

I was 38 when I was diagnosed
 
I was diagnosed when I was a baby, had TC seizures until I was 2 or 3.
I started taking seizures again when I was 24.
 
They started in my late 20s. It may sound strange, but in some ways I envy those who have had it since you were children. You've had a chance to get used to it (somewhat) and to choose a career based on it.

I was diagnosed in my mid-30s, and it can wreck a career and heavily interfere with starting over in a new one.

I'd have to agree with you on that, not that it's any easier for those that were diagnosed at a younger age. They still have to cope. But to be settled in your life and career without it and then just out of nowhere it hits and everything gets turned upside down...that's hard to handle. Its also hard to understand and except at an older age as well, i think anyways. I'm a phlebotomist, I draw blood all day. I was so determined that I could continue in my job but between the shakes and the emotional side effects, I am now on a personal leave of absence and most likely will lose my job one way or the other. Had I been diagnosed as a child, I probably wouldn't of chose this kind of career.
 
I'd have to agree with you on that, not that it's any easier for those that were diagnosed at a younger age. They still have to cope. But to be settled in your life and career without it and then just out of nowhere it hits and everything gets turned upside down...that's hard to handle. Its also hard to understand and except at an older age as well, i think anyways. I'm a phlebotomist, I draw blood all day. I was so determined that I could continue in my job but between the shakes and the emotional side effects, I am now on a personal leave of absence and most likely will lose my job one way or the other. Had I been diagnosed as a child, I probably wouldn't of chose this kind of career.

seizures (that I know of) haven't been nearly as distracting at work as this website has for me

:e:
 
I'd have to agree with you on that...

Oh, I agree completely. I'm sure it isn't easy at any age. The grass is always greener, of course, but I remember reading that those with adult-onset e have real difficulties keeping their prior lives intact.

Sorry to hear about your present work. Maybe another allied health career would allow you to make a relatively easy transition.
 
seizures (that I know of) haven't been nearly as distracting at work as this website has for me

:e:


Lol I hear you Peter, CWP is a big distraction, and I love it.

I was diagnosed with E at age 25 (after two grand mals), though simple partials actually started at 15 but went misdiagnosed until I was 30 as PTSD.
 
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I was diagnosed less than a month ago and am 31.

I've also thought that late onset is tougher. I was already between jobs before dx but now I'm not sure what to do.
 
I'm 41 and just got diagnosed a little less than 2 months ago, I think. I never had a seizure that I was aware (i.e. a TC) of until I was almost 40 and then not another one for 18 months. I guess 2 TC's get's your ticket punched quickly; I was luckier in that regard than others on here still trying to get diagnosed.
 
Lol I hear you Peter, CWP is a big distraction, and I love it.

I was diagnosed with E at age 25 (after two grand mals), though simple partials actually started at 16 but went misdiagnosed until I was 30 as PTSD.

how old are you now?
 
I was diagnosed less than a month ago and am 31.

I've also thought that late onset is tougher. I was already between jobs before dx but now I'm not sure what to do.


keep on track unless the new job could be dangerous!

stay healthy and try to keep track of your seizure type regularities and anticipate how that could affect your activities

it's a real bummer to start defining yourself by limitations
 
33. 18 years right about now actually since my first (and utterly terrifying) simple partial. !*@#!* HATE THEM.

simple partials must have their own uh... special magic (ugh) about them - at least when I've had my (known) seizures I've been unconscious, so it's obvious to anyone around
 
simple partials must have their own uh... special magic (ugh) about them - at least when I've had my (known) seizures I've been unconscious, so it's obvious to anyone around

Well I can't speak for those who suffer from motor-symptom S.Ps but coming from the psychic department where it's constant fear and deja vu (in my case after so many years the deja vu is usually 'haven't I had a partial this scary before?'), and tho it lasts less than a minute, the fear is gripping and terrifying.
Yeah, sign me up.
 
Well I can't speak for those who suffer from motor-symptom S.Ps but coming from the psychic department where it's constant fear and deja vu (in my case after so many years the deja vu is usually 'haven't I had a partial this scary before?'), and tho it lasts less than a minute, the fear is gripping and terrifying.
Yeah, sign me up.

I think one of the worst things for me is in not really believing these things happen to me, thinking I'm causing them psychosomatically somehow, thinking I'm just crazy, thinking through thoughts I've had etc. but then certain days come along and the feelings are there - boom - and then other times I feel that special weird that I can't even describe now, and then I'll end up KO'd!
 
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