age at diagnosis? anyone over the age of 35 when diagnosed?

[Maidenminx]

keep on track unless the new job could be dangerous!

stay healthy and try to keep track of your seizure type regularities and anticipate how that could affect your activities

it's a real bummer to start defining yourself by limitations

Thanks. My biggest difficulty at the moment is distinguishing what's a seizure and what is just me. Before seeing the neurologist I was happy to assume that I only had to worry about the TCs, now any weird sensation has me worrying. I spend so much time alone that I don't know how far it goes.
All I have experience in is hospitality and I'm having a hard time figuring out where else I could be useful (the neutraliser suggested avoiding situations where a fall could be dangerous.

My mum reminded me the other day that as a kid I used to trip over the pattern in the lino... If she had said that a few weeks ago, I would have used that as further proof that I have aspergers, now I wonder if I got that all wrong and I've had epilepsy all my life. It could explain alot.

 

[j.j.]

I was 45 when diagnosed initially with SPS and later CPS,I am now 50.Took a long time to get used to it. Totally changed my life, I no longer work, drive, lost confidence and self esteem. J.J.

 

[petero]

Thanks. My biggest difficulty at the moment is distinguishing what's a seizure and what is just me. Before seeing the neurologist I was happy to assume that I only had to worry about the TCs, now any weird sensation has me worrying. I spend so much time alone that I don't know how far it goes.....

I know exactly what this experience is like - I'm pretty much at the point where I'm just like - who gives a crap?
which is a pretty healthy mindset I guess - as long as I'm doing things at the least incrementally to be healthier overall, and I'm quite healthy (alas a smoker 1 pack a day... tending toward cigars, which are healthier...) - and taking my meds
the "who gives a crap" mentality rapidly diminishes when I do have seizures... at which point it's a global conspiracy against me

 

[Meetz1064]

Pfffft

I was formally diagnosed at 13 months. As for getting used to my seizures....that took a few decades......and I have progressed from having one type at a young age to 4 types now at my *ahem* CONTINUED young age :roflmao::roflmao: