Hi everyone,
Ive been in a bit of a delemma for the past year.
Ive been taking the same two AED meds for a long period of time now, and its only been in the past year that I feel like theres a trend (ie: roughly once a month rather than “oh hey, let the seizure happen whenever”).
After my child neurologist recommended me see an adult neurologist, Ive been seeing the same doctor, but over the past year, when Ive tried to take a more proactive approach to decrease the frequency of my seizures, and talk it over with my neurologist...its like his opionion or the highway....any suggestiions or opinions I bring up, im paraphrasing here, but its like “ sure, then go ahead with what youu’ve heard online or throigh another doctor”.....so i decided to go to my family doctor and get a referral to another neurologist. I thought maybe I wouldnt have to work for my healtth and find someone who would take the time to listen and explain and dicuss, but I went recently (2nd time seeing this new neurologist), and it felt like I was ordering fast food. He asked me how I was, I told him my frequency of seizures was increasing, and he suggested a new medication...the same one I was hesitant about taking the first time I saw him.....its like I was in and out in less than 5 minutes, and realizing going down the elevator “wait, what...what just happened...do I really feel comfortable changing meds”.....and I asked him what happens if theres a bad reaction or the steps needed if I need to change meds, and he was literally like “whe’ll see when when and if we get there”
The other problem with this new neurologist is that its very inconvenient to see him...1 appointment in 6-8 months...no calling up and asking to see him as soon as possible or etc. Atleast with my previous neurologist, I could call and make an appointment for a week or two after. I know everyones situation is different, but its frustrating.
On one hand, I want to try this new medication, but on the other, if I start taking this new med, I have to stick with this new neurologist...because its not like I can go to my previous neurologist and say “Ive been seeing this new neurologist and taking this new medication....can you renew it for me or reassess my condition”
Are all doctors like this....the feeling of wanting you in and out ASAP rather than taking the time to make you feel relaxed and having an honest 15-30 minute discussion about your overall health and the future direction.
I would love to know what other people’s experiences are and any opinions about mine as well.
Truly appreciate every comment in advance.
Many thanks!
Ive been in a bit of a delemma for the past year.
Ive been taking the same two AED meds for a long period of time now, and its only been in the past year that I feel like theres a trend (ie: roughly once a month rather than “oh hey, let the seizure happen whenever”).
After my child neurologist recommended me see an adult neurologist, Ive been seeing the same doctor, but over the past year, when Ive tried to take a more proactive approach to decrease the frequency of my seizures, and talk it over with my neurologist...its like his opionion or the highway....any suggestiions or opinions I bring up, im paraphrasing here, but its like “ sure, then go ahead with what youu’ve heard online or throigh another doctor”.....so i decided to go to my family doctor and get a referral to another neurologist. I thought maybe I wouldnt have to work for my healtth and find someone who would take the time to listen and explain and dicuss, but I went recently (2nd time seeing this new neurologist), and it felt like I was ordering fast food. He asked me how I was, I told him my frequency of seizures was increasing, and he suggested a new medication...the same one I was hesitant about taking the first time I saw him.....its like I was in and out in less than 5 minutes, and realizing going down the elevator “wait, what...what just happened...do I really feel comfortable changing meds”.....and I asked him what happens if theres a bad reaction or the steps needed if I need to change meds, and he was literally like “whe’ll see when when and if we get there”
The other problem with this new neurologist is that its very inconvenient to see him...1 appointment in 6-8 months...no calling up and asking to see him as soon as possible or etc. Atleast with my previous neurologist, I could call and make an appointment for a week or two after. I know everyones situation is different, but its frustrating.
On one hand, I want to try this new medication, but on the other, if I start taking this new med, I have to stick with this new neurologist...because its not like I can go to my previous neurologist and say “Ive been seeing this new neurologist and taking this new medication....can you renew it for me or reassess my condition”
Are all doctors like this....the feeling of wanting you in and out ASAP rather than taking the time to make you feel relaxed and having an honest 15-30 minute discussion about your overall health and the future direction.
I would love to know what other people’s experiences are and any opinions about mine as well.
Truly appreciate every comment in advance.
Many thanks!