Can anyone tell me if they have experienced anything similar to this and if it sounds like a photosensitive seizure? I am very afraid of this happening again because it was so serious. I believe I have photosensitive seizures. I am awaiting an insurance change to have an EEG because of a seizure. Here is my experience:
I HAVE HAD TWO WHAT I AND MY NEUROLOGIST BELIEVE TO BE PHOTOSENSITIVE SEIZURES. BOTH WERE WHEN I WAS RIDING IN A CAR ON THE PASSENGER SIDE. THE SUN WAS FLASHING BETWEEN THE TREES AND BECAME VERY PROBLEMATIC FOR ME. I DEVELOPED A FORM OF PARANOIA. THE BRIGHT LIGHTS BECAME SILVER SEEMED AS THOUGH IN CARS FOLLOWING ME. I THOUGHT I WAS HALLUCINATING. I BEGAN TO SCREAM WITH FEAR. THOSE WITH ME SAID I IMMEDIATELY WENT INTO A FULL BLOWN CLONIC-TONIC SEIZURE FOLLOWED NOT BREATHING AT ALL. MY SKIN BECAME ASHY AND MY EYES OPEN, FIXED AND DILATED, AND GLAZED OVER AS IF I HAD DIED. ONE PERSON WITH ME WAS A PARAMEDIC OF 20 YEARS AND COULN'T EVEN FIND A PULSE. SHE BEGAN TO DO MOUTH TO MOUTH AND WITHIN ABOUT FIVE MINUTES, I TOOK A DEEP MUCH NEEDED BREATH. I WAS RUSHED TO THE ER AND THEY COULDN'T FIGURE OUT WHAT HAD HAPPENED. CT WAS NORMAL. MY NEUROLOGIST ORDERED AN EEG WHICH I HAVE YET TO HAVE. I ALSO HAVE MULTIPLE SCLEROSIS AND MY DAUGHTER HAS HAD NON SPECIFIC SEVERE CLONIC TONIC EPILEPSY FOR 9 YEARS AND IS ON LAMICTAL. 150MG TWICE / DAY. THEY ARE SOMEWHAT CONTROLLED BUT SHE STILL HAS QUITE A FEW. I DON'T KNOW IF ANY OF THIS IS RELATED. PLEASE HELP!!:dontknow:
I HAVE HAD TWO WHAT I AND MY NEUROLOGIST BELIEVE TO BE PHOTOSENSITIVE SEIZURES. BOTH WERE WHEN I WAS RIDING IN A CAR ON THE PASSENGER SIDE. THE SUN WAS FLASHING BETWEEN THE TREES AND BECAME VERY PROBLEMATIC FOR ME. I DEVELOPED A FORM OF PARANOIA. THE BRIGHT LIGHTS BECAME SILVER SEEMED AS THOUGH IN CARS FOLLOWING ME. I THOUGHT I WAS HALLUCINATING. I BEGAN TO SCREAM WITH FEAR. THOSE WITH ME SAID I IMMEDIATELY WENT INTO A FULL BLOWN CLONIC-TONIC SEIZURE FOLLOWED NOT BREATHING AT ALL. MY SKIN BECAME ASHY AND MY EYES OPEN, FIXED AND DILATED, AND GLAZED OVER AS IF I HAD DIED. ONE PERSON WITH ME WAS A PARAMEDIC OF 20 YEARS AND COULN'T EVEN FIND A PULSE. SHE BEGAN TO DO MOUTH TO MOUTH AND WITHIN ABOUT FIVE MINUTES, I TOOK A DEEP MUCH NEEDED BREATH. I WAS RUSHED TO THE ER AND THEY COULDN'T FIGURE OUT WHAT HAD HAPPENED. CT WAS NORMAL. MY NEUROLOGIST ORDERED AN EEG WHICH I HAVE YET TO HAVE. I ALSO HAVE MULTIPLE SCLEROSIS AND MY DAUGHTER HAS HAD NON SPECIFIC SEVERE CLONIC TONIC EPILEPSY FOR 9 YEARS AND IS ON LAMICTAL. 150MG TWICE / DAY. THEY ARE SOMEWHAT CONTROLLED BUT SHE STILL HAS QUITE A FEW. I DON'T KNOW IF ANY OF THIS IS RELATED. PLEASE HELP!!:dontknow: