Thanks for the reply, Ruth. I have told my neurologist everything and I have meet with him only twice. You see I have had a time even getting to the point where I am at now. Ever since the seizures have been coming on I have been trying to seek help but was always misdiagnosed even by other neurologists. I was misdiagnosed for years as having either migraines, a movement disorder or just being plain crazy. Mayo thought I was crazy and told me so. I never felt so low in my life. I have hired and fired so many doctors it is not even funny. I didn't even have the slightest clue that it could be seizures until I met my current neurologist, (I hired him in August of this year), and he told me that I am having seizures but that he needed to perform an EEG, (Had the EEG performed just this past weekend). He will not diagnose me with it officially with it just yet but I am sure he will soon. He seems very intelligent.
As far as the medicine. I am now currently on Lyrica. It does not work and I have told my neurologist this as well. He told me to go back to my family doctor to get my medicine switched since he did not prescribe it and that he didn't want to put me on anything else until he has investigated my situation a little better and find out more about my seizures. I understand that but this is really bad so I did go to my family doctor and she put me on Topamax but I cannot afford the prescription, because my insurance will not pick up on it until I have the word seizure or migraine in my records. I know you are probably thinking well, you were diagnosed with migraines before but that was by another neurologist that has retired now so I can't call him or anything. My family doctor has seen the seizures and she told me they look like complex partials and she is a smart cookie as well. It has just been a slow and drawn out process to get me the right kind of care.
People think that all seizures look the same and even some doctors think this as well. I stumped the whole Mayo neurology team while I was there and that is why they called me crazy. They didn't directly call me that but they told me I needed a shrink. Yes, I do some pretty crazy stuff with my seizures but I am not crazy at all.
Anyway, I do not drive intentially, I did the driving incident the other day while in the midst of a seizure. I gave my keys to my husband and told him to hide his keys from me, which he does now.
I know my story sounds a little odd but it has been hell for me over the past 10 years not knowing what is wrong and how to help myself but somehow I have managed and in about three weeks I will see my neurolgist again and hopefully he will have a good EEG to read and get me diagnosed FINALLY!
I want that more than anything right now. I am on the right road finally, it is just getting to the finish line now.
Thanks again for your concern Ruth, but I am getting help, it has just been a slow process.
tam bam