I had my first tonic-clonic seizure last thursday. Actually, it was my first known seizure ever, although I have experienced the same aura numerous times in the past without anything coming of it.
It was very strange for me. I was there one moment, gone the next. When I was finally coming out of it, all I could see were colors (yellow, white and tan) and I couldn't remember literally anything except for language. I experienced a rollercoaster of emotions ranging from familiarity and calmness to terror and dread.
The entire ordeal lasted about ten minutes altogether, which I hear isn't very commonplace. I was wondering, are seizure times inconsistent? I regained my memory after about an hour, but I couldn't say if I'm forgetting anything that isn't immediately used knowledge.
I have a few questions if anyone would mind giving me some insight into your own experiences. They go as follows:
0. How old were you when you were first diagnosed?
1. What are tonic-clonic seizures typically like for you?
2. Have you ever experienced memory loss during this time?
3. If so, what is the longest amount of time your amnesia lasted?
---If so, how do you cope with it?
I have been considering carrying around a notebook in my purse that has basic information about myself in case I'm ever in a situation where I've had a seizure and I'm by myself or something.
4. Do you think I'm over-preparing?
5. Do you have the same post-ictal response every time or does it change?
Thank you so much for taking the time to read and answer questions if you answer them. <3
It was very strange for me. I was there one moment, gone the next. When I was finally coming out of it, all I could see were colors (yellow, white and tan) and I couldn't remember literally anything except for language. I experienced a rollercoaster of emotions ranging from familiarity and calmness to terror and dread.
The entire ordeal lasted about ten minutes altogether, which I hear isn't very commonplace. I was wondering, are seizure times inconsistent? I regained my memory after about an hour, but I couldn't say if I'm forgetting anything that isn't immediately used knowledge.
I have a few questions if anyone would mind giving me some insight into your own experiences. They go as follows:
0. How old were you when you were first diagnosed?
1. What are tonic-clonic seizures typically like for you?
2. Have you ever experienced memory loss during this time?
3. If so, what is the longest amount of time your amnesia lasted?
---If so, how do you cope with it?
I have been considering carrying around a notebook in my purse that has basic information about myself in case I'm ever in a situation where I've had a seizure and I'm by myself or something.
4. Do you think I'm over-preparing?
5. Do you have the same post-ictal response every time or does it change?
Thank you so much for taking the time to read and answer questions if you answer them. <3
Last edited: