We had a GI work-up, and the GI doc said Jon had Inflammatory Bowel Disease, but could not suggest a remedy. I consulted with a pediatrician in Thailand, whose specialty was nutrition (and the Keto diet). She said that, due to the tummy flu, Jon's gut was chronically inflamed, and he was not absorbing fats (or meds) properly. Thus, he wasn't getting enough of the important fats from the diet to make it work. So, she worked with us on healing the gut. A very simple diet for a few weeks of foods that were helpful for inflammation and easily digested, a round of probiotics, pancreatic enzymes (to break down fat molecules), and zinc supplement (which helps heal gut). After a few weeks on this regime, the seizures faded away, and within 2 months stopped altogether. And, now, 2 1/2 years later, he remains seizure free.
Hi Karen and AlohaBird,
I have suspected the gut issues and antibiotics usage after reading Dr. Perlmutter's "Brain Maker" book. However, the neurologist has not paid any attention to it. In any case, the neurologists have not been very helpful and still keep pestering me for starting my son on AEDs.
I do give Probiotic supplement orally to my son. Can the probiotic bacteria survive the stomach acid?
Dr. Perlmutter mentioned a case where the kid improved significantly within one day after the kid's mother gave her kid very high amounts of Probiotics (1200 billion units). They used a medical term "enema" for doing it. I want to do it for my son but do not know how? Is edema like a rectal syringe for pumping water dissolved Probiotics capsules inside?
There is mention of Fecal Microbial Transplant also in his book. I am wondering if anyone on this forum has used FMT approach and can share their experiences.
I am thinking of flying to Florida and taking an appointment with Dr. Perlmutter.
Regards,
Jay
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