BlueSkies2220
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crazychick -
I know that you and i are not on the same medication, but here goes-
My tegretol makes me very tired. i have to take it because if I dont, i will start getting moody, ups and downs with moods, angry at times, until finally i seize. It would take a good month or so for me to get back into that pattern, and for me, i would rather take my med than have to go through that. i take a small dose, 100mg which actually works for me.
If you could downgrade your dose so that it still works for you, and still has the same effect, it might be helpful. or if you could get a different medication that would be better alltogether.. the problem is that you have to get used to it, and also - i dont know any AED that does not have side effects.
Its not just about putting up with it - its about finding solutions to make life liveable again!
What i do with my tiredness is drink coffee - things with caffeine, or those energy shots - too much and it would override my medication. just enough and i am able to function. i drink a pot of coffee every day and for some people that would be an overload, but for me, it keeps me going. i also take a nap during the day for a few hours, wake up feeling rested.
BUT - i still have memory problems. its so bad for me that i will get up out of my chair, walk across the room to get someting and forget what i was going to get! I also forget names of people ive known for years, or forget names of certain things. my husband helps me with it, and he knows how i make up nicknames for things or keep describing something by its characteristics until the name hits me. Without my medication, I have trouble speaking and i stamer and stutter but with my meds, i can finaly SPEAK normally. Happens often but ive found ways of dealing with it.
there are more natural ways of getting energy back. there are suppliments like COq10, B vitamins, folic acid and biotin, Fish oil [supposedly helps with depression], vitamin D, etc. The kinds of things that help with the brain, the blood, and how your body is able to convert food into energy. When you find that right combination of supplements and you take them daily, its a boost.
Speaking of boost - there are drinks out there that are made just for nutritional purposes, like boost, ensure, carnation instant breakfast, etc. you can find them at the grocery store. Usually they are packed with vitamins or other benefits that could help you to get your nutrition back in shape. and if you have trouble eating they make a great substitute when you cant hold food down. I drink these types of drinks often because they help me to get the vitamins and minerals that my body craves.
I also find that having a hobby is a good way of relieving stress. If you could pour your time and attention into something creative, it feels so good and it gets your brain going in certain ways. You have to exercise your mind - use it or loose it, as they say. The more you do that, the better off you will be and in time, your brain actually regenerates itself by creating NEW neural pathways {at least thats what ive heard} - its amazing!!
I know that you and i are not on the same medication, but here goes-
My tegretol makes me very tired. i have to take it because if I dont, i will start getting moody, ups and downs with moods, angry at times, until finally i seize. It would take a good month or so for me to get back into that pattern, and for me, i would rather take my med than have to go through that. i take a small dose, 100mg which actually works for me.
If you could downgrade your dose so that it still works for you, and still has the same effect, it might be helpful. or if you could get a different medication that would be better alltogether.. the problem is that you have to get used to it, and also - i dont know any AED that does not have side effects.
Its not just about putting up with it - its about finding solutions to make life liveable again!
What i do with my tiredness is drink coffee - things with caffeine, or those energy shots - too much and it would override my medication. just enough and i am able to function. i drink a pot of coffee every day and for some people that would be an overload, but for me, it keeps me going. i also take a nap during the day for a few hours, wake up feeling rested.
BUT - i still have memory problems. its so bad for me that i will get up out of my chair, walk across the room to get someting and forget what i was going to get! I also forget names of people ive known for years, or forget names of certain things. my husband helps me with it, and he knows how i make up nicknames for things or keep describing something by its characteristics until the name hits me. Without my medication, I have trouble speaking and i stamer and stutter but with my meds, i can finaly SPEAK normally. Happens often but ive found ways of dealing with it.
there are more natural ways of getting energy back. there are suppliments like COq10, B vitamins, folic acid and biotin, Fish oil [supposedly helps with depression], vitamin D, etc. The kinds of things that help with the brain, the blood, and how your body is able to convert food into energy. When you find that right combination of supplements and you take them daily, its a boost.
Speaking of boost - there are drinks out there that are made just for nutritional purposes, like boost, ensure, carnation instant breakfast, etc. you can find them at the grocery store. Usually they are packed with vitamins or other benefits that could help you to get your nutrition back in shape. and if you have trouble eating they make a great substitute when you cant hold food down. I drink these types of drinks often because they help me to get the vitamins and minerals that my body craves.
I also find that having a hobby is a good way of relieving stress. If you could pour your time and attention into something creative, it feels so good and it gets your brain going in certain ways. You have to exercise your mind - use it or loose it, as they say. The more you do that, the better off you will be and in time, your brain actually regenerates itself by creating NEW neural pathways {at least thats what ive heard} - its amazing!!
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