Elaine H
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Hi Paradise Survivor
It's a brilliant site isn't it?! I have really taken a lot of comfort in knowing that it's not just me that's going bonkers! I absolutely hate the auras, I could deal with just a Complex Partial or even a Tonic Clonic, because I'm not "there" when it happens, I've always said it's not me that suffers with epilepsy but the people around me, the first I know, like last week when I collapsed outside the village shop, is when I'm getting into an ambulance, or saying to my partner .."Did I just go wonky on you?"
My aura will always start with a strange feeling of impending doom, usually in the pit of my stomach, it's actually happening now as I type this, then it will travel up across my chest, and out across my tongue with the strangest taste, I have tried a million million times over the years, to describe the taste and strange smell I get, but I just can't, it is absolutely terrifying, I just hate to be on my own when it happens, it is more likely to happen when I'm not doing anything to challenging, if I am out anywhere, I am happier if I stop what I'm doing, and lean against a wall, just to know there is no one behind me is very reassuring, crazy or what?! I've never had a problem with time I don't think, I kind of know what you mean though, I have a hell of a job judging time sometimes, I think something happened months ago, and it was only last week, weird, and quite scary.
I just wish employers would be a lot more understanding, once again I am unemployed, and I think that's about eight times now that I've lost my job because of people's ignorance and stupidity.
Anyway, good to read your experiences, and hope we can all keep in touch and keep each other smiling.
Cheers
Elaine
It's a brilliant site isn't it?! I have really taken a lot of comfort in knowing that it's not just me that's going bonkers! I absolutely hate the auras, I could deal with just a Complex Partial or even a Tonic Clonic, because I'm not "there" when it happens, I've always said it's not me that suffers with epilepsy but the people around me, the first I know, like last week when I collapsed outside the village shop, is when I'm getting into an ambulance, or saying to my partner .."Did I just go wonky on you?"
My aura will always start with a strange feeling of impending doom, usually in the pit of my stomach, it's actually happening now as I type this, then it will travel up across my chest, and out across my tongue with the strangest taste, I have tried a million million times over the years, to describe the taste and strange smell I get, but I just can't, it is absolutely terrifying, I just hate to be on my own when it happens, it is more likely to happen when I'm not doing anything to challenging, if I am out anywhere, I am happier if I stop what I'm doing, and lean against a wall, just to know there is no one behind me is very reassuring, crazy or what?! I've never had a problem with time I don't think, I kind of know what you mean though, I have a hell of a job judging time sometimes, I think something happened months ago, and it was only last week, weird, and quite scary.
I just wish employers would be a lot more understanding, once again I am unemployed, and I think that's about eight times now that I've lost my job because of people's ignorance and stupidity.
Anyway, good to read your experiences, and hope we can all keep in touch and keep each other smiling.
Cheers
Elaine