hello. i am new here and have some questions. background:
my husband, 33, had a critical head injury at age 19 and a one-wk coma. since then he has memory and concentration problems, slowed comprehension in only certain subjects and at certain times, and a combo of other difficult to describe neuro / cognitive issues that are not always immediately apparant. we have 2 kids, 2 and 4 yrs old.
3 wks ago he woke up after 1 hour of sleep and came into the living rm to say hello to me in the way he does when he is half asleep. a few mins later i heard a huge bump-bump-bang....found him flat on his back, unconcious, eyes wide open and moving around...and he had an erection. when he came to he was very weak and confused and thirsty...drank 5 glasses of water. the ER doc said it was an epileptic seizure.
he also said that sometimes when i think he is flaking out in the middle of a conversation and when he drops the dishes while washing them that they might have been petite mals all the time.
he started him on tegretol and clomex. he is having headaches, dehydration, fatigue, mood swings and depression.
the dr says its too dangerous for him to be alone w/the kids until we figure all this out...he is having EEG tomorrow and MRI next week (middle of the night and i'm worried about him becoming overtired).
QUESTIONS: is there anyone out there who only started seizures many yrs after a head injury? is there anyone with similar background? are his neuro symptoms going to be worse now bc of episode(s )and meds?
and what about the kids? our whole life has changed...he can't drive and our little one is in preK 3kilometers from our home on foot or by bus i have to take him down 150 steps. twice a day. i'm losing a lot of work. my hub used to take the kids to the park every sat and be with them 2 nights a week so i could work....his family is not coming to help and mine live in a different country. will be happy to hear any advice from people in similar situations, either with a history of head injury/neuro problems and people with small children, etc. how do you handle the child care, what is permitted? and how do i know its really epilepsy if he only had one full on seizure? will the MRI give us answers?
thank you so much!
my husband, 33, had a critical head injury at age 19 and a one-wk coma. since then he has memory and concentration problems, slowed comprehension in only certain subjects and at certain times, and a combo of other difficult to describe neuro / cognitive issues that are not always immediately apparant. we have 2 kids, 2 and 4 yrs old.
3 wks ago he woke up after 1 hour of sleep and came into the living rm to say hello to me in the way he does when he is half asleep. a few mins later i heard a huge bump-bump-bang....found him flat on his back, unconcious, eyes wide open and moving around...and he had an erection. when he came to he was very weak and confused and thirsty...drank 5 glasses of water. the ER doc said it was an epileptic seizure.
he also said that sometimes when i think he is flaking out in the middle of a conversation and when he drops the dishes while washing them that they might have been petite mals all the time.
he started him on tegretol and clomex. he is having headaches, dehydration, fatigue, mood swings and depression.
the dr says its too dangerous for him to be alone w/the kids until we figure all this out...he is having EEG tomorrow and MRI next week (middle of the night and i'm worried about him becoming overtired).
QUESTIONS: is there anyone out there who only started seizures many yrs after a head injury? is there anyone with similar background? are his neuro symptoms going to be worse now bc of episode(s )and meds?
and what about the kids? our whole life has changed...he can't drive and our little one is in preK 3kilometers from our home on foot or by bus i have to take him down 150 steps. twice a day. i'm losing a lot of work. my hub used to take the kids to the park every sat and be with them 2 nights a week so i could work....his family is not coming to help and mine live in a different country. will be happy to hear any advice from people in similar situations, either with a history of head injury/neuro problems and people with small children, etc. how do you handle the child care, what is permitted? and how do i know its really epilepsy if he only had one full on seizure? will the MRI give us answers?
thank you so much!