We started out with an neurologist in the Asian country where we were living at the time. But she prescribed medication that wasn't appropriate for a baby, which didn't give us a lot of confidence.
We came to the U.S. to see a 2nd neurologist. Worked with her for several months, then returned to Asia. The medication she prescribed didn't work. And we didn't like the way we had to wait for hours to see her, even with an appointment.
So we then flew to Bangkok to see a 3rd neurologist. He got the seizures stopped for 3 1/2 years.
We happened to be back in the U.S. when son started having seizures again. So, we took him to neurologist #4, at a hospital that has since become part of Johns Hopkins. She worked with us on 3 different meds, none of which worked, and then we got him on the Ketogenic diet.
His seizures stopped on the Ketogenic diet, but then that doctor increased his Depakote level -- not because he was having seizures, but because blood test showed he was below therapeutic levels. This sent him into a tailspin -- no seizures, but he got horribly affected -- crying all the time, lost all the language he had just regained, and worse of all, it started to damage his liver.
So, his neurologist referred him to doctor #5, an Epileptologist, also with Johns Hopkins. This doctor weaned him off Depakote and just kept him on the ketogenic diet.
We returned to Asia, and back to doctor #3 (neurologist), and also doctor #6, who specializes in the Ketogenic diet, since doctor #3 isn't so familiar with it. So, now we work with doctor #3 and doctor #6, and they consult with doctor #5 via email.