1. Matthew74

    Doctors and believing you can get better

    After years of angst I think I finally figured out why I'm so frustrated with doctors. I don't mean what it is they do or don't do that I don't like (like not listening, etc.). I think the root cause is that I believe my quality of life could be greatly improved, but they don't. I have good...
  2. Matthew74

    Communicating with doctors...

    I have been dealing with a lot of "health professionals" lately, mostly doctors and doctor's assistants. I can see their visit notes online as part of my medical record. From their notes and actions, I can see that they're either not listening, or I am failing to communicate. For example...
  3. R

    epileptologist in Georgia

    My son, 17, was diagnosed two and half years ago with epilepsy. We have been to two neurologist and one epileptologist. The epileptologist is in Jacksonville Mayo, which I thought would be best. My son has only had six seizures in his span of diagnosis. The Mayo doctor wants to refer him to...
  4. Matthew74

    Do you feel in control of your medical treatment?

    I was wondering whether you all feel like you are "in control" of your medical treatment. I don't mean that in any deep way, just do you feel more like you are making decisions about what meds you take, surgery, etc., or do you feel like the doctor makes all the decisions? Objectively, I am...
  5. JLogefeil

    This Might Help Peope Who Are Being Told They Are PNES??

    I notice a lot latley that there are more post being posted about people getting diagnosed with PNES. I have been diagnoised with it a few time and fighting with doc saying I don't think there PNES. I have been learning lots about what to say, what not to say, things to watch out for, sneaky...
  6. N

    [News] Authoritarian Doctors

    Interesting piece in the New York Times about a study indicating that -- surprise! -- doctors aren't very good at listening to patients and/or encouraging them to share in the decision-making process.
  7. JLogefeil

    Started Taking Keppra, Do People WhO Take This Feel The Same Way?

    So on Tuesday or Wednesday day I was walking home from the Social severity office and I had a seizure in the way home one the side of the highway and they let my go at 2:00 am I was in the ER for 11 hrs. Then next day I wanted to thank the people who helped me, so invites them over and I had...
  8. Aaleayha

    Doctors are.... [insert]

    AUGH, I'm so tired of my doctors! They are all lazy and arrogant. They told me it was in my head, we said we didn't believe them. I have no mental issues, thank you! So we start researching and after 3 years we were positive it had something to do with my neck, they tell us we aren't medical...
  9. P

    [News] Drug Companies Hire Troubled Doctors As Experts

    This from NPR: "Drug companies say they hire the most-respected doctors in their fields for the critical task of teaching about the benefits and risks of the companies' drugs. But an investigation by ProPublica has uncovered hundreds of doctors receiving company payments who had been accused...
  10. ddr1166

    Epileptologist v. Neurologist?

    Hi all - not sure if I'm spelling it right...can someone give me a quick lowdown on the pros/cons - do most of you have both or just one kind of doc? Thanks.
  11. RobinN

    [Info] Doctors Need More Training in Communication
  12. P

    [Info] Comprehensive list of GOOD Neurologists…Epileptologists…Neurosurgeons…and Pediatric D

    Below is a compilation by forum members of who have had positive experiences with docs over the years. This list is based on personal recommendations and, of course is purely subjective. But I thought it might be helpful for anyone looking for a good...
  13. Bernard

    Docs seek gag orders to stop patients' reviews

    Docs seek gag orders to stop patients' reviews I don't know about you, but any doctor shows me a piece of paper like that and I'm going to laugh in his face.
  14. asalomonsterx

    Has anyone else heard....

    I got an email from a friend today which didn't go into detail. And when I asked him what about, he said it was about a lady who suffered from seizures and it took the doctors 4 years to properly diagnosis. They found out the she had Lumieres. My friend said that the lady went in for a sore...
  15. kayaker4157

    Doctor's Response Time

    Hi everyone - On average, how long does it take your doctor to get back to you when you call him/her with a problem, such as meds not working, breakthrough seizures or reaction to your meds? Mine has been taking 2, 3 or even 4-5 days (if over a weekend) to get back to me. By that time I've...
  16. Bernard

    What doctors don't tell you

    What doctors don't tell you
  17. B

    Dr's makea snap judgement w/out the facts

    I saw my VNS doc today who's an epileptologist he doesn't handle my meds. He was asking me how my seizures where doing and I gave him list of how many I'd had a month since June. Than I started talking to him telling him about how crowds can trigger my sz's. But I wasn't going to let that keep...
  18. B

    Dr's secretary who wont give messages

    I have the worst problem my neuros secretary doesn't listen to her voice mail and doesn't give my messages. My seizures have increased and I'm still recovering from one I had Sunday evening.I know it was a C P seizure.:e: :agree: I left her a message on her voice mail to return my call and...
  19. brain

    Level 3/4 Epilepsy Centers Map - United States Only

    Here is the Map for all Level 3 / 4 Epilepsy Centers available in United States. Click on the State or the one nearest to you. Level 3 /4 Epilepsy Centers Map
  20. Bernard

    Patients' Need to Spearhead Talks with Doctors about New Treatment Options

    Leading Epilepsy Groups Unveil New Survey Results Challenging Patients to Take Charge of Their Health
Top Bottom