Karen Nichols
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Hi,
I am new here and my son is 6, has been diagnosed with Doose syndrome and has been having seizures for 18 months. We have tried many ( 10, I think) meds and none have helped, some have surely worsened things.
We are currently trying neurofeedback ( 10 sessions so far) and I am trying to learn as much as I can from others here who have tried this. I wonder how often you went ( 2x/week? more? less?) for how many weeks, etc.
We have already noticed a seizure reduction ( but we also have a natural up and down rollercoaster, so it's a bit early to attribute it to the NF yet) and the NF doctor says his "slow" brain waves are decreasing significantly....
I am still learning the lingo and how this all works. I want to make sure I know what to watch out for, etc. We are currently travelling 3 hours each way to do these treatments ( Montana) and we are OK with that, but it is a lot of time away from school, work, etc. There is a psychotherapist in our town who also does NF ( mostly for ADHD, behavioral things, etc.) but she does not have experience with seizure disorders. How important is the training/background of the doctor/practitioner?
Thanks for any feedback!
karen
I am new here and my son is 6, has been diagnosed with Doose syndrome and has been having seizures for 18 months. We have tried many ( 10, I think) meds and none have helped, some have surely worsened things.
We are currently trying neurofeedback ( 10 sessions so far) and I am trying to learn as much as I can from others here who have tried this. I wonder how often you went ( 2x/week? more? less?) for how many weeks, etc.
We have already noticed a seizure reduction ( but we also have a natural up and down rollercoaster, so it's a bit early to attribute it to the NF yet) and the NF doctor says his "slow" brain waves are decreasing significantly....
I am still learning the lingo and how this all works. I want to make sure I know what to watch out for, etc. We are currently travelling 3 hours each way to do these treatments ( Montana) and we are OK with that, but it is a lot of time away from school, work, etc. There is a psychotherapist in our town who also does NF ( mostly for ADHD, behavioral things, etc.) but she does not have experience with seizure disorders. How important is the training/background of the doctor/practitioner?
Thanks for any feedback!
karen