Katiered
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Good afternoon!
I was rooting around (rather unsuccessfully) on the internet for help, then realized you may have some valuable input with your years of combined experience!
I was diagnosed with simple partial seizures officially this week, although I have been taking Lamictal for bi-polar for years. I went off of it in October which really brought on the seizures. At my first apt. with the neurologist he got me on to Topamax rather than Lamictal. Finally up at full dose, and still having many seizures a week I went back for my next apt. and was told to stop taking Topamax, and am now going back onto the Lamictal (although at a much higher dose than they prescribe for bi-polar disorder, so hopefully it will actually stop the seizures).
I have two concerns that have lead me to believe I may need a medical alert bracelet, but don't want to do it just for the fun of it (because spending that much and having to wear something every day doesn't seem like fun at all! )
I'm curious for the sake of my future self, but also for the 'to order, or not to order' debate I'm having with myself.
I was rooting around (rather unsuccessfully) on the internet for help, then realized you may have some valuable input with your years of combined experience!
I was diagnosed with simple partial seizures officially this week, although I have been taking Lamictal for bi-polar for years. I went off of it in October which really brought on the seizures. At my first apt. with the neurologist he got me on to Topamax rather than Lamictal. Finally up at full dose, and still having many seizures a week I went back for my next apt. and was told to stop taking Topamax, and am now going back onto the Lamictal (although at a much higher dose than they prescribe for bi-polar disorder, so hopefully it will actually stop the seizures).
I have two concerns that have lead me to believe I may need a medical alert bracelet, but don't want to do it just for the fun of it (because spending that much and having to wear something every day doesn't seem like fun at all! )
1. I'm concerned that stopping Topamax and super slowly starting Lamictal (he wants to work up to full dose over four months) will allow for even worse seizures than I've been having since they did worsen when I initially reduced my dosage of lamictal, and then again when I stopped it. They are so much more physical now, to the point where I've had difficulty breathing a couple times. I'm worried that they could be more involved than just simple partials?
2. I've read a lot of your stories where you have simple partials and then suddenly have a TC. Is it possible that simple partial seizures (with a normal EEG) to progress to more serious seizures?
2. I've read a lot of your stories where you have simple partials and then suddenly have a TC. Is it possible that simple partial seizures (with a normal EEG) to progress to more serious seizures?
I'm curious for the sake of my future self, but also for the 'to order, or not to order' debate I'm having with myself.