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Jen_K

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Hi Everyone,

Just wanted to say hi, as this is my first post. My husband has epilepsy and I am here to support him.

When I met my husband he told me he had Epilepsy, at that point he had been siezure free for over 3 years. It was soon after that he started getting partial's. They eventually changed to where he now has Tonic Clonic's about once a month.

It can get overwhelming at times, for both of us and I would just like to be more informed.

Thanks,

Jen
 
Hi, welcome to our group. I got diagnosed about 2 years old with simple and complex partials....this forum has been a Godsend for me. Everyone here is supportive and it is great for information or whenever you need to vent. It is so encouraging when I see other family members who are so supportive and interested in learning about E...as my family prefers to ignore I have seizures
Jenn
 
Welcome JD

It's always good to see other people being supportive of someone with seizures. I have to agree it can be a bit much because they often have a tendency to evolve & change.

This is a great site for support (even for support of the supporters). People here are great with sharing experiences, the library http://www.coping-with-epilepsy.com/forums/f22/ has tons of references & the padded room http://www.coping-with-epilepsy.com/forums/f34/ is a great place to vent, after all seizures can cause a lot of stress.

Something I found helpful that I like to show people is the list of alternative treatments. http://www.coping-with-epilepsy.com/index.php?p=alternative-treatments. There have been people here who have tried a few of the treatments & It just gives so many more options of how to control seizures besides with pills.
 
Hey love!
Welcome welcome welcome. Nice to see you here. you took a big step by joining, but you can totally feel free to ask questions. even if you wanna vent and scream, there is the padded room for that *oh those cushy springy walls in there are so comforting* and everyone is willing to give advice. from, why does he snore after a t/c to why does he crave sily things after a seizure *for me its sushi and caesar salad*

You'll get answers to what ever you feel you need to ask. I have found this place a bit of a safe haven. even though i know my fiance (chad) can read whatever i write even if he doesnt sign it. It still lets him know that I worry about what he thinks. how he looks at me when I seize (unless drool and blood and messy hair become a fashion trend, i seriously lack in the "pretty" department after!* :)

just give me a PM whenever you need me. girl talk is fine too.

Love and hugs
Rae
 
Hi Jen welcome to CWE!

There's a ton of information here, and also a terrific community of support. Plenty of FOPWE* here to help answer your questions and offer advice.

Best,
Nakamova

*Friends of People With Epilepsy
 
Hi Rae!

Thanks for the sweet post : )

I know chris loves this site, and I can now see why.

It was a rough Christmas, and that is what made me join. I hope you are doing better.

Talk to you soon,

Jen
 
Thank you :)

Thank you for the welcome. I will make sure to check out your links.

Thank you,

Jen
 
Oh, cool BEANS!!!

I think it's soooo great when spouses come in to support their other half here! I really do! I'm sure being an E caregiver is not easy by any stretch of the imagination.

Epileric gave you some great links to check out Jen. And any time you need to bend an ear feel free. There's plenty to bend here, but you can bend mine any time you want.....

It's nice to "meet" you!

Meetz
:rock:
 
Meetz1064 said:
I think it's soooo great when spouses come in to support their other half here! I really do! I'm sure being an E caregiver is not easy by any stretch of the imagination.

Epileric gave you some great links to check out Jen. And any time you need to bend an ear feel free. There's plenty to bend here, but you can bend mine any time you want.....

It's nice to "meet" you!

Meetz
:rock:
Click to expand...

yup! Meetz, Nakamova and epilepric will quickly become your favourites too, cuz they are most definitely mine *oooh did i just earn brownie points???? lol* and i they let me bend their ears all the time, and give me many shoulders to cry on.

Darcness is also a great guy, and he is the spouse of a great lady who has E.

Come to think of it...is there anyone on here who has E and their spouse has E as well??? I don't think so...hmmmm that would have some great insight

FYI: Drarvindr (i think that's how his username is..feel free to correct it mods, then delete this sentence) is another awesome guy. He is the only person i know of who see everything as an E patient and a Neurologist, mostly because he's both. he's knows the trials and tribulations we go through and how a neurologist should react and help.

Well hugs and hugs again
Rae

***Editor's note: DrArvindR is STUDYING to be a neurologist, but is already a medical doctor...***
 
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Welcome! It is good to see couples working together. I have E and CWE has been a great benefit in learning about E and making some friends on the way. My wife never uses the site but when we were dealing with our worst days we never knew the site. She had a coworker with E that has helped her out and to be honest she has an amazing ability to take it and move on.

I hope you get all the benefits we all have gotten from here.
 
Hi Jen
I am new too and am also supporting a husband with epilepsy, nice to meet you and look forward to comparing notes and just talking.
 
:cheers:

Welcome to another great Canadian member. Spousal support is so important with E. I know my spouse has gotten me through many hard times, plus actually saved my life twice (almost drowning). You can read about that in the HEROS thread.

There are also members who have went through the struggles of non-supportive spouses and families. You may realize how special you are when you run across those members.

So for now, come on in, have a seat, and I will get the coffee.

:cheers:
 
Thanks everyone for welcoming my wonderful wife!

She is so supportive of me in what I go through. I couldn't get through it without her... She is there for me every day, and helps me so much in dealing with epilepsy.

:)
 
Hi Jen! Welcome to CWE. I am the one with E in my marriage. :) Like your husband, mine had pretty much disappeared for several years before I got married. I still remember having one in front of him while we were dating and expecting him to turn tail and run. How glad I was when he didn't. Feel free to read through the library and posts, ask questions, vent when needed, and just chime in. :)
 
Hi Jen:

Welcome to the site, and I commend you for your support of your husband. Everyone has their own story here, just varying degrees of it. When spouses get involved, then it creates for couples what they really need to be - and that is a team. :clap:
 
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