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Hello everyone, my name is Cathy and I am 39 yrs old.
I guess my story starts when I was a little kid in the 1970s. My mom noticed some odd behavior after a DPT immunization when I was 4 yrs old. She said I would start to wring my fingers, then would just zone out. She told my pediatrician, who didn't believe her because the Dr. never witnessed any odd behavior. So she spent time in the library (early 70s before internet!) and read a case about a boy in the UK that contracted epilepsy from a bad DPT shot. She took the info to my dr. and from there, tests were run. She was right! I was diagnosed with psycho-motor epilepsy. The 1st med I was on made me crazy hyper. She talks of me climbing the back fence and taking off running, another time I cut lose in a shopping mall and she found me in a china (fine glassware) store walking around with arms out and very close to knocking things over. :lol: They switched me to dilantin and I grew out of my epilepsy in a few years. The Dr said there was a chance of it returning during adolescence, and if it didnt then I shouldn't have to worry about anything...
Fast forward to April of this year. I am 39 years old....
We had dinner as a family at 6 pm as usual. I then put on my walking shoes and grab my MP3 player and go on my 2 1/2 mile walk on the bike trail by my house. I feel great!! The walk is fine. I get home around 7pm and my hubby and oldest son leave for their boy scout meeting. My 9 yr old and my 5 yr old are out front playing with neighbors. I decide to vacuum my den. The canister needs emptying 1st. The next thing I realize--------- I am in my bed, totally confused and I call my hubbys cell. The clock says 7:45pm and my tongue is torn to shreads. I ask him when he is coming home for dinner, and how late it was. He said we had dinner at the usual time, and he and my son were at scouts, like every Monday evening. He immediately comes home since my being so out of it really scared him.
I go see my primary care physician the next day. He thinks it must have been a seizure, due to my tongue and the amnesia. He wants me to go for a MRI and then to a neuro for a EEG. Since I was leaving for a trip to San Francisco 3 days later, I decided these appts could wait til I was back from my trip.
I was very out of sorts for the next 6 days....but I must also say I overindulged in spirits on my Cali trip, and I am sure that didn't help.
I was also in denial....
I finally got around to having that MRI done in June 2009. Results were normal. But I couldnt remember the neurologist my Dr recommended me seeing.
Fast forward to Friday, Aug 20, 2009. My girlfriend and I go to see Staind & Chevelle (modern rock n roll, lol) in concert. Oh we got drunk!! Came home and I continued to drink. I think it was 5:30 am before I went to bed.
I couldn't sleep late either because I had to drive to my local radio station and pick up the Incubus tickets I won for the next nights concert. :rock: Now, this is my fav band, and I won great tix, and a meet and greet with the band!!!! 
(Did I mention they are my FAVS??!!) My daughter and I drive over to claim them at around 1 pm. I was feeling kind of rough from over-indulging the night before. I was excited tho, because tomorrow, I would meet my favorite band...
At 4:45 pm Friday I was on the phone with my friend. I scream then drop the phone. My kids said I fell to the floor and had a (tonic clonic) seizure. My 11 yr old was terrified and called 911. My 10 yr old went to grab a neighbor. I didn't even recognize him.
The only memory of all this I have, is being wheeled out on the gourney and the ambulance ride to the hospital. I was in the ER for a bit, cat scan was fine and they sent me home. Told me I shouldn't go to tomorrow's concert..but if I did, it was not advisable to drink. I had the headache from hell.
The next day I went to that concert, and I got to meet the band. It was cool, but I was still out of it, and a little dizzy. No way was I gonna miss that dream come true.
The following Monday I made my 1st neuro appt. I met him today and I just LOVE him, even tho he's younger then I am. 1st thing he tells me is no drinking on seizure meds...lol.
He prescribed me Lamictal XR. He also said he needed a MRI with contrast, which they were able to do today. He also wants a 72 hr EEG at home, and some blood work.
I had to call the office because I couldnt remember if I was supposed to start the meds now, or after the EEG. They called me back and said to go ahead and begin the meds.
Is it typical to do an EEG once meds are started? I would think it would be counterproductive????????
Anyhoo...I know this is very wordy. I'm sorry. I am just saying farewell to my favorite beer Corona, with a slice of lime, before I say adios. Dr told me no drinking on these kinds of meds.
I'll start tomorrow.
Thanks for reading if you made it this far.
:banana:
Hello everyone, my name is Cathy and I am 39 yrs old.
I guess my story starts when I was a little kid in the 1970s. My mom noticed some odd behavior after a DPT immunization when I was 4 yrs old. She said I would start to wring my fingers, then would just zone out. She told my pediatrician, who didn't believe her because the Dr. never witnessed any odd behavior. So she spent time in the library (early 70s before internet!) and read a case about a boy in the UK that contracted epilepsy from a bad DPT shot. She took the info to my dr. and from there, tests were run. She was right! I was diagnosed with psycho-motor epilepsy. The 1st med I was on made me crazy hyper. She talks of me climbing the back fence and taking off running, another time I cut lose in a shopping mall and she found me in a china (fine glassware) store walking around with arms out and very close to knocking things over. :lol: They switched me to dilantin and I grew out of my epilepsy in a few years. The Dr said there was a chance of it returning during adolescence, and if it didnt then I shouldn't have to worry about anything...
Fast forward to April of this year. I am 39 years old....
We had dinner as a family at 6 pm as usual. I then put on my walking shoes and grab my MP3 player and go on my 2 1/2 mile walk on the bike trail by my house. I feel great!! The walk is fine. I get home around 7pm and my hubby and oldest son leave for their boy scout meeting. My 9 yr old and my 5 yr old are out front playing with neighbors. I decide to vacuum my den. The canister needs emptying 1st. The next thing I realize--------- I am in my bed, totally confused and I call my hubbys cell. The clock says 7:45pm and my tongue is torn to shreads. I ask him when he is coming home for dinner, and how late it was. He said we had dinner at the usual time, and he and my son were at scouts, like every Monday evening. He immediately comes home since my being so out of it really scared him.
I go see my primary care physician the next day. He thinks it must have been a seizure, due to my tongue and the amnesia. He wants me to go for a MRI and then to a neuro for a EEG. Since I was leaving for a trip to San Francisco 3 days later, I decided these appts could wait til I was back from my trip.
I was very out of sorts for the next 6 days....but I must also say I overindulged in spirits on my Cali trip, and I am sure that didn't help.
I was also in denial....
I finally got around to having that MRI done in June 2009. Results were normal. But I couldnt remember the neurologist my Dr recommended me seeing.
Fast forward to Friday, Aug 20, 2009. My girlfriend and I go to see Staind & Chevelle (modern rock n roll, lol) in concert. Oh we got drunk!! Came home and I continued to drink. I think it was 5:30 am before I went to bed.
I couldn't sleep late either because I had to drive to my local radio station and pick up the Incubus tickets I won for the next nights concert. :rock: Now, this is my fav band, and I won great tix, and a meet and greet with the band!!!! (Did I mention they are my FAVS??!!) My daughter and I drive over to claim them at around 1 pm. I was feeling kind of rough from over-indulging the night before. I was excited tho, because tomorrow, I would meet my favorite band...At 4:45 pm Friday I was on the phone with my friend. I scream then drop the phone. My kids said I fell to the floor and had a (tonic clonic) seizure. My 11 yr old was terrified and called 911. My 10 yr old went to grab a neighbor. I didn't even recognize him.
The only memory of all this I have, is being wheeled out on the gourney and the ambulance ride to the hospital. I was in the ER for a bit, cat scan was fine and they sent me home. Told me I shouldn't go to tomorrow's concert..but if I did, it was not advisable to drink. I had the headache from hell.The next day I went to that concert, and I got to meet the band. It was cool, but I was still out of it, and a little dizzy. No way was I gonna miss that dream come true.
The following Monday I made my 1st neuro appt. I met him today and I just LOVE him, even tho he's younger then I am. 1st thing he tells me is no drinking on seizure meds...lol.
He prescribed me Lamictal XR. He also said he needed a MRI with contrast, which they were able to do today. He also wants a 72 hr EEG at home, and some blood work.
I had to call the office because I couldnt remember if I was supposed to start the meds now, or after the EEG. They called me back and said to go ahead and begin the meds.
Is it typical to do an EEG once meds are started? I would think it would be counterproductive????????
Anyhoo...I know this is very wordy. I'm sorry. I am just saying farewell to my favorite beer Corona, with a slice of lime, before I say adios. Dr told me no drinking on these kinds of meds.
I'll start tomorrow.
Thanks for reading if you made it this far.
:banana:
