crazychick10793
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Sorry I'm so slow responding, I've been reading Rebecca's story, which prompted me to order the Jim Robbins book, which I've just finished. I live in a very rural area, and would love to give the neurofeedback a try, so far the closest practitioner I can find is 2+ hours away.
Thank you, Vicky, I will def give her the info, that is very sweet. I'm getting a little better at giving her space, and it seems about the time I let down my guard she has another one
She has had another one since the 6/28, on August 1. This time she was at a friend's house that was not prepared for it. She was going to church with some friends that had been briefed on what to do, then they stopped at another girl's house to change clothes where it happened. She dropped from a standing position this time, which really scares me, but thankfully only busted her lip. She had stayed up kinda late the night before but is still taking the Trileptal. Doc doesn't want to change meds just yet since it could have been a fluke from not enough sleep or her forgetting her pill and not admitting it (she was not at home at the time).
The range so far is three to six weeks. Not regular enough to tie them to her menstrual cycle just yet. Looking over my notes, I discovered that the last three times, she had an unusual (for her) emotional angry outburst exactly six days following the seizures. She becomes irrationally angry, usually with her dad, and is unprovoked. Not sure what to make of this yet. Later, she apologizes and mellows out. Her doctor has diagnosed her as moderately depressed too, not sure what started first or if one's causing the other.
We met with the school staff member who does 504s the other day, she seemed understanding and patient. I mentioned the problems with staff last spring but am trying to start new and give this year's teachers the benefit of the doubt; we'll see.
the emotional outburst could be linked to the seizures, i often have emotional outburst after a bad seizure too, however i am also diagnosed as Bipolar and a few other things so it's hard to say where my outburst are coming from