Abilene220
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Hello, everyone. A bit more than a year ago my then 29-year-old son began having nocturnal seizures for no apparent reason. He has had all the usual CAT scans, MRIs, EEGs and cardiac workups. No help really, and we doubt whether the EEG is really his as the doctor claimed it looks like one from a 9-year-old.
Seizures (always nocturnal) are increasing from every 5 months or so to every 4-6 weeks. Drs. keep increasing Keppra (up to 3,000mg/day and have added 25 mg. Lamictil, and just increased that to 50.
Sleep deprivation seems to cause at least some of the seizures.
We are now investigating possibility of black mold and any possible role, but have just begun that process.
Will see naturopath soon and hope to go to Johns Hopkins for a workup.
Neurologist is uninteresting in anything but getting paid. Horrific. We are changing neurologists.
That's it--except my son is getting pretty despondent--and so am I.
Seizures (always nocturnal) are increasing from every 5 months or so to every 4-6 weeks. Drs. keep increasing Keppra (up to 3,000mg/day and have added 25 mg. Lamictil, and just increased that to 50.
Sleep deprivation seems to cause at least some of the seizures.
We are now investigating possibility of black mold and any possible role, but have just begun that process.
Will see naturopath soon and hope to go to Johns Hopkins for a workup.
Neurologist is uninteresting in anything but getting paid. Horrific. We are changing neurologists.
That's it--except my son is getting pretty despondent--and so am I.