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Even Keel
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Hello, all.
I'm a newbie to all this and need some help.
I have a diagnosis of probable temporal lobe epilepsy. Two sleep deprived EEGs have come out negative. My doctor has me scheduled for a week-long inpatient (Hospital) videotaped EEG, where they will take me completely off my meds and monitor for a week. This seems like a bit much - to check into the hospital for a week. Have any of you had this done? Is it usual? Isn't there another way that's less intrusive into one's life?
Can an EEG come out negative and you still have epilepsy? A week long one should be more conclusive, but can it have a false positive or a false negative? And if so, why?
Have any of you been suddenly taken off your meds? What happened? This has me really scared. I've been on Keppra for 3 weeks, and am finally starting to feel better. I'm afraid if they take me off it will take weeks to feel better when they put me on something else.
Truth be told, I feel altogether scared. Scared of epilepsy. Scared of my life being so screwed up right now. Sheesh... it will take over 3 hours each way to get to work by bus. On top of an 8-10 hour work day = 16 hour days. That's crazy. And when I get back to work, what if my seizures aren't under control, and I do or say something crazy? Really, people don't understand epilepsy, except in the classic types of cases.
I think I'll just go away and cry now. (Is this the Keppra?)
I'm a newbie to all this and need some help.
I have a diagnosis of probable temporal lobe epilepsy. Two sleep deprived EEGs have come out negative. My doctor has me scheduled for a week-long inpatient (Hospital) videotaped EEG, where they will take me completely off my meds and monitor for a week. This seems like a bit much - to check into the hospital for a week. Have any of you had this done? Is it usual? Isn't there another way that's less intrusive into one's life?
Can an EEG come out negative and you still have epilepsy? A week long one should be more conclusive, but can it have a false positive or a false negative? And if so, why?
Have any of you been suddenly taken off your meds? What happened? This has me really scared. I've been on Keppra for 3 weeks, and am finally starting to feel better. I'm afraid if they take me off it will take weeks to feel better when they put me on something else.
Truth be told, I feel altogether scared. Scared of epilepsy. Scared of my life being so screwed up right now. Sheesh... it will take over 3 hours each way to get to work by bus. On top of an 8-10 hour work day = 16 hour days. That's crazy. And when I get back to work, what if my seizures aren't under control, and I do or say something crazy? Really, people don't understand epilepsy, except in the classic types of cases.
I think I'll just go away and cry now. (Is this the Keppra?)