Sunday, April 4, 2010
lamotrigine 300
effexor 150
taken 10:15 am
Bad night of sleep. I caught the jerking this morning mostly in his shoulder, but also his abdomen and legs sometimes -- no pattern to that just chaotic jerks. He said it was worse in the night, the jerks were bigger -- his whole body would jerk rhytmically, strongest in his upper body and arms. Each group of jerks would last 10s. He said the spasms were like they were timed to a metronome. This apparently went on about every 5 minutes for several hours. I slept through all this. I also slept through a gaggle of screaming women at 4 am.
He woke up cranky and his whole body hurts. No kidding. If I could afford it, I would go in and change his gen to brand name and see if it made a difference.
He needs to see the doc and get on the reduction of the Effexor immediately. I've written a letter requesting a referral for the E clinic which he can take with him. The psych docs are telling lazydoc he needs to refer partner to the chronic pain clinic (about bloody time. We've asked him a lot, and he refused).
He had a few staring spells first thing and is wearing sunglasses to keep his focus, but his energy is okay and his mood has been good for the last hour, since he ate cinnamon raisin bagels with boisenberry jam. Mmm, boisenberry.
Spoke too soon. The 1pm exhaustion suddenly hit.
Evening he was tired and everything just hurt. Had tingling in his feet and they were cold.
6:30 episodes of bad smell, very intense for a few minutes, slowly subsiding over 40 minutes. Everything tastes awful during those 40 minutes.
Btween 7 and 9 had several episodes of sudden onset anger, which satyed for 20 minutes then suddenly stopped. No reason for the anger -- he was setting up to paint, and was excited to paint, then suddenly he didn't want to and was angry about it. He found it very weird, because he really wanted to paint.
Whenever I read about a new or different seizure, I ask partner if he's ever experienced it. Most often the answer is no, but sometimes... so I was reading Endless's description of a seizure that made her smarter, where the brain seems to be firing more quickly and smoothly, and he tells me he gets that before the floaty feeling he sometimes gets. He says everything suddenly becomes clear, like the fog lifts, and all of a sudden it's like he knows the answer to everything. I know that's a classic temporal lobe type of seizure. I need to do some reading to see what side that relates to. Huh.
Within 5 minutes of falling asleep he lifted his head and neck off the pillow pushing against the pillow with his right arm and extended his left arm and twisted it around like he was stretching. I asked him if he did it on purpose and he spoke softly and said I don't know, which means no. That's dystonic posturing, I think. the twisting of his arm. He laid back down and then giggled uncontrollably twice for a few seconds. He got up a little later, gathered some clothes and then came and sat on the edge of the bed. He spoke softly about going for a walk, because his hands were tingling (he gets restless when his hands tingle). He was very easy to convince to come back to bed, which makes me think he wasn't all mentally present at that point, but I'll have to ask him today.
He was also rubbing his feet together. I thought it might have been intentional because his feet were tingly, but he says it was both intentional and unintentional. He would rub his feet on purpose, then they would rub without his intention. At one point, he lifted his legs and smacked his fee together, which was totally unintentional.