okay, new thing happened

[leoniedelt]

i've asked before about my episodes of anxiety. I am now 100% positive they are simple partials.

However, something "new" happened last night.

A few months ago my husband complained of sexual behaviour in my sleep around 1pm. My GP double my clonazepam to compensate for poor sleep and that was that.

We have been lowering the clonazepam though because it does make me too tired to function, really. And now that i am back down to 0.5mg per night, i'm doing things in my sleep again (or having sz?)

Last night after what i remember to be a severe bout of vertigo (!!) i was apparently patting down my husband's body length "looking for the edge of the bed" because i was convinced i was going to fall off.

wtf, brain? is that a sz or a dream thing?

edited: i am keeping a diary, and no patterns are jumping out at me. whatever's going on in the day (the weird anxiety things for up to 20 seconds, the muscle jerkings and the bad head/suddenly sleepy things) is not food, blood sugar, blood pressure, actual situational anxiety, heart related, or anything else :/ except that if memory serves, a lot of these "simple partials" happened when i was walking. Not all, but many.

 

[leoniedelt]

desperate for ideas / thoughts as to what happened last night.

i really dont want to go to my GP if all this is psychological / my imagination...

 

[Nakamova]

Ordinarily I'd say that vertigo sensation was just a bad dream, but if you're having simple partials during the day, then the nighttime vertigo is also likely to be a sp. (Vertigo is a fairly common aura/sp).

Not every kind of epilepsy has obvious triggers -- keep looking, but don't be discouraged if you can't identify anything. Does epilepsy run in the family? Sometimes genetic epilepsy is less likely to have an environmental trigger.

 

[leoniedelt]

My aunt has it, but only after a head injury. No one else does that i am aware of.

I'd been in bed since 10, asleep since 10.30 and this was 1am... i am only aware of it being very brief - 20 seconds max? which is why i dont think it was a dream. i woke after patting my husband's belly, aware that i'd just done it and aware of why - i felt so dizzy/spinny that i genuinely thought i was going to fall off the bed.

 

[leoniedelt]

a clear night last night.

the vertigo was a simple partial too? i suspect so.

Whaat will happen if i ignore this / continue on like i am? I remember how stupid the drugs made me before - i mean really stupid, i dont have much memory from those years in my life except a bit...

 

[leoniedelt]

right. i talked for almost half an hour with a majour Epilepsy charity today, and not only are they of the opinion that yes, these are simple focal seizures, the propranolol I take has stopped me reacting to these incidents with anxiety - therefore i'm experiencing the true event now... which is why this has really only come to light since going on the propranolol.

They said that since my GP holds an epilepsy review appointment and offers them to me every so often because of my diagnosis, i ought to just ring up and ask for a review appointment, and tell them everything. then it probably wouldnt be a case of having to go through all the tests etc again, but since it has already been accepted, just a case of management / medication again.

 

[leoniedelt]

definitely having simple focal seizures, after lowering my clonazepam last week, i had 3 in a row yesterday - about 15-20 minutes apart, lasting for about 10 seconds, and leaving me thinking i am cracking up or imagined it. I can talk through them, which would suggest non dominant origin, and as I am a leftie (for hands) but rightie for eyes and feet, could be either side...