beachgirl7
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I am new to this forum as i need some sort of support system. I was diagnosed with left sided tempotal epilepsy when i was 23. I am now 25. Since then i have been hospitalised several times for "status epilepticus".
More recently i had something very scary happen. I was trying to go to sleep when the right half of my face became numb. I ignored it as nothing until my right arm and right leg became numb. I then started having left sided chest pain and a terrible headache. Once i made it to the ER they called a stroke code. I was then admitted for "observation" due to my MRI and CT coming back normal. Two days later it happened again but this time i was unable to move my right side. Again another stroke code was called. I had 4 different diagnosis when i was discharged. The first being a complex migrane, the second being stress (was not stressed at the time), third being a side effect of my topamax, and the fourth being possible seizure activity with the todds paralysis post seizure.
I am no stranger to seizures as mine start with a focal and usually end with a grand mal. I was completly coherent during the "non stroke" episodes. And remebered them fully. I was wondering has this happened to anyone else? I live alone and the thought of not being able to dial 911 for help or my throat being paralysed is terrifying to me. My nuerologist ruled out seizure activity and is bouncing me over to a cardiologist. I feel like no one knows what happened so they are sending me from specialist to specialist.
Any input is welcomed. Thanks
More recently i had something very scary happen. I was trying to go to sleep when the right half of my face became numb. I ignored it as nothing until my right arm and right leg became numb. I then started having left sided chest pain and a terrible headache. Once i made it to the ER they called a stroke code. I was then admitted for "observation" due to my MRI and CT coming back normal. Two days later it happened again but this time i was unable to move my right side. Again another stroke code was called. I had 4 different diagnosis when i was discharged. The first being a complex migrane, the second being stress (was not stressed at the time), third being a side effect of my topamax, and the fourth being possible seizure activity with the todds paralysis post seizure.
I am no stranger to seizures as mine start with a focal and usually end with a grand mal. I was completly coherent during the "non stroke" episodes. And remebered them fully. I was wondering has this happened to anyone else? I live alone and the thought of not being able to dial 911 for help or my throat being paralysed is terrifying to me. My nuerologist ruled out seizure activity and is bouncing me over to a cardiologist. I feel like no one knows what happened so they are sending me from specialist to specialist.
Any input is welcomed. Thanks