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It seems to be the case that many people here with focal epilepsy such as temporal and frontal aren't diagnosed with epilepsy until years and decades after they first sought treatment and were lumped into the psychiatric folder.
After many sleepless nights many of us have poured over books and the internet wanting to understand what was not right with both body and mind, until finally the slightly ambiguous diagnosis of temporal lobe epilepsy was made.
I feel many of us have an uncanny shared experience that cannot be denied. Especially concerning temporal lobe seizures as the experience is unmistakeable. So here I am, I feel like I'm on course to actually getting better for a few reasons, but one in particular. I discovered from epilepsy.com as well as from other reputable sources that peoples with temporal lobe epilepsy experience hormone disfunction, as stress hormones as well as melatonin secretion are altered in peoples with epilepsy. Ah ha! I knew it! I discussed endocrine problems with my therapist back in 2000, and she agreed it was a possibility. After being treated for depression, anxiety and serious sleep issues that have made me feel angry, frustrated, hopeless and of course physically exhausted seems to be the piece of the puzzle that makes sense.
The stress I feel is very intense, it feels like a sharp stinging fire in my head pushing my thoughts and exhausting my body to the degree my only coping skill is to sleep because I can escape for a little while. My memory is affected, especially short-term my mood is terrible and concentration is out the window. The feeling also makes my emotional experience very intense. Last night I watched a Paul McCartney concert dvd and couldn't help but weep out of its beauty, the same occurred while listening to chamber music which was on the radio. To stop my silly crying I had to just go to sleep, because everywhere music was hitting me right in the heart.
From my both academic and personal research I know that the hippocampus scar that causes epilepsy can be cause for stress disorders and sleep disorders in people with TLE. What do you guys think? Is there a medication or procedure that can turn off this stress feeling? I know caffeine, poor sleep add to the severity. I think I understand TLE a bit better, now I want to get better. My struggle has been like the common dream where you are to be somewhere or meet someone though things keep blocking your path and the hour gets later and later. So if you have any suggestions I'm ready to listen to your advice! Sorry for the long post I can be wordy
After many sleepless nights many of us have poured over books and the internet wanting to understand what was not right with both body and mind, until finally the slightly ambiguous diagnosis of temporal lobe epilepsy was made.
I feel many of us have an uncanny shared experience that cannot be denied. Especially concerning temporal lobe seizures as the experience is unmistakeable. So here I am, I feel like I'm on course to actually getting better for a few reasons, but one in particular. I discovered from epilepsy.com as well as from other reputable sources that peoples with temporal lobe epilepsy experience hormone disfunction, as stress hormones as well as melatonin secretion are altered in peoples with epilepsy. Ah ha! I knew it! I discussed endocrine problems with my therapist back in 2000, and she agreed it was a possibility. After being treated for depression, anxiety and serious sleep issues that have made me feel angry, frustrated, hopeless and of course physically exhausted seems to be the piece of the puzzle that makes sense.
The stress I feel is very intense, it feels like a sharp stinging fire in my head pushing my thoughts and exhausting my body to the degree my only coping skill is to sleep because I can escape for a little while. My memory is affected, especially short-term my mood is terrible and concentration is out the window. The feeling also makes my emotional experience very intense. Last night I watched a Paul McCartney concert dvd and couldn't help but weep out of its beauty, the same occurred while listening to chamber music which was on the radio. To stop my silly crying I had to just go to sleep, because everywhere music was hitting me right in the heart.
From my both academic and personal research I know that the hippocampus scar that causes epilepsy can be cause for stress disorders and sleep disorders in people with TLE. What do you guys think? Is there a medication or procedure that can turn off this stress feeling? I know caffeine, poor sleep add to the severity. I think I understand TLE a bit better, now I want to get better. My struggle has been like the common dream where you are to be somewhere or meet someone though things keep blocking your path and the hour gets later and later. So if you have any suggestions I'm ready to listen to your advice! Sorry for the long post I can be wordy
