RobinN
Super Mom
- Messages
- 7,835
- Reaction score
- 7
- Points
- 163
I've been advised against drinking orange juice in any amount
Can you elaborate on this comment. I am not understanding it in relationship to the thread.
Are you allergic to oranges?
Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.
Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!
I've been advised against drinking orange juice in any amount
Can you elaborate on this comment. I am not understanding it in relationship to the thread.
... I do seem to have developed a rash. I'm guessing from the magnesium I am taking. ...
Well done "googly" ( page 4.) Re lack of magnesium. I suffer from about 80% on that list as well as sz's. Who sets the r.d.a? Who"s to say the recommended dose of vits/minerals is correct? Whats right for some may not be for others, it"s not law. Would doc"s/profs/researchers in epilepsy risk there well paid jobs by telling you about a simple cure? Who knows! My doc says he has an interest in epilepsy but does nothing about it and the prof"s even worse, they get paid "anyway" in the UK. Action speaks louder than words in my book. Or I"m I being cynical/bitter or a realist/tell it like it is? It" gotta worth trying experimenting with vits/minerals (within reason). I know I will. P.S. I"ve learned more from this site that I ever have from professionals. To whoever is running this site, "good for you."
I was wondering, which types of meds are you taking that is being eliminated by spinach and green tea?
My doctor said I am SOL, so I gave up all hope. :clap:
A “fit” does not make the body lie flat to lessen gravitational pressure on blood flow. First of all of that were true then all epileptics would have convulsive seizures & they don’t. The majority are partial non-convulsive seizures so that assumption doesn’t apply. Secondly, when convulsing people do not lie flat, they are busy flailing and third, we are built in a way that makes it easy for blood to circulate with minimal gravitational resistance. If there was more force to fight gravity then we’d feel the blood rushing to our heads and feet every time we lay down to sleep.A few years ago I was seeking God for cures to illness scientifically. I would pray and ask God to show me about how the illness worked and how to cure it. My fried John has epilepsy so I prayed about it. As I prayed I kneeled down and asked God what to do. A voice spoke to me and said “Stand up I love people”, and the words, "Tryglycerides", and "Sodium Magnate" entered my mind. A vision followed seconds after and I saw my friend John drunk and looking awful. It did not make a lot of sense to me. I looked up the word Tryglycertides, and Sodium Magnate. Tryglycerides was a real medical word, but I could find nothing on Solium Magnate, but from this point I started my research. I also at a latter date saw two pipes, one was blocked and blood was not flowing through it, the other pipe had normal blood flow. What I did was to focus the research on the effect of blood flow on epilepsy. I found out that Epilepsy is not just caused by brain damage but rather can be caused by irregular blood flow. During this research I actually met a girl at the bus stop who had Epilepsy, she had no brain damage, but took fits, she was diagnosed with abnormally low blood pressure, she also had fits when drinking alchahol. The effect of blood flow on Epilepsy is discussed below. After doing all my research the conclusion I came to was that Epilepsy is the bodies attempt to return blood supply to the brain, that a fit causes the body to lie flat so there is less gravitational pressure on the blood flow. When the brain senses a lack of nutrients to key areas, it shuts down the body using a fit, to resupply the brain. I see it as a normal function of the brain that inappropriately triggers. I will provide evidence to back this theory in this post. However I can not be 100% certain that this theory is correct, it would need to be tested. Below is the evidence supporting this view, and finally how Sodium Magnate and Tryglycerides may help. As for brain damage causing epilepsy I see it as acting as a localised blood clot, slowing movement of blood to the brain.
Evidence that blood supply is linked to fitting.
After completing my research, I found that the Manchester Heart Centre in the United Kingdom had done research that showed that many cases of epilepsy are blood related not a brain disorder, and they were concerned about misdiagnosis. I agree with their findings:
"Syncope is a situation where there's a sudden, abrupt loss of blood supply to the brain, with resultant loss of consciousness and collapse. And it is recognised that commonly such a collapse can be complicated by abnormal movements: thrashing of the limbs and so forth, sometimes facial automatisms, which are very, very difficult to distinguish from epilepsy, even for a specialist observer", said Adam Fitzpatrick of the Manchester Heart Centre (Epilepsy Misdiagnosis, Normal Swan, ABC radio National, 1999)
"Amongst the concerns is that some patients may receive anti-convulsant medication inappropriately, and that might have harmful effects. Some of the anti-convulsant agents, particularly the older ones, have unpleasant side effects", said Adam Fitzpatrick of the Manchester Heart Centre (Epilepsy Misdiagnosis, Normal Swan, ABC radio National, 1999).
First off you have to remember that you listed many things that might cause a seizure but that does not mean they are epileptic seizures which may have very different causes & properties.Fitting Can be Caused by Poor Blood Flow
So what other evidence is there that epilepsy or more correctly fitting is related to blood flow. The following is a list of epileptic type symptoms in people with no brain damage, the following times fitting can occur:
•We see all these instances where healthy people can fit, are can be linked to blood loss or can be put down to lower heart function. In a blood test blood is removed resulting in temporarily less blood, and slightly lower blood pressure. Eclampsia, or fitting at child birth is accompanied by blood loss, and irregular heart beat, and has been shown to occur more frequently in people with cardiovascular disease. Wounding results in blood loss, and lower blood pressure. Blood clots restrict blood flow. Naturally low blood pressure is a disease where the person has abnormally low blood pressure, some of these people take fits.
- After or during a Blood Test. Having taken a fit during a blood test myself, and being found to have no brain damage, I know this can occur in healthy people.
- Eclampsia (blood loss, tiring, and irregular heart beat during child birth) which has been shown to have a strong correlation to cardiovascular disease
- During Physical Injury and Trauma, blood redirected or lost at a wound site
- Water on the Brain
- Elderly People and old pet dogs that previously did not fit
- Blood Clots
- Naturally low blood pressure
So I am suggesting that reduced blood flow can cause fitting. So how does brain damage relate to blood flow. When a person has suffered brain damage some of the cellular pathways used to supply nutrients to the brain no longer function as they do in a healthy person, they die leaving scare tissue, or become broken or fractured. Having healed either incorrectly, or some pathways ceasing to operate at all. The cellular pathways also act like a complex network of pipes in the transfer of blood and glucose, used to perform brain function, by supplying chemicals for brain reactions. We have seen slight drops in blood pressure are possibly related to fitting, so it is possible the distribution of blood around brain damage could be reduced and act as a blood clot. Brain damage becomes like a permanent blood clot in the brain, requiring more blood pressure to get the feul to the brain.
http://en.wikipedia.org/wiki/ConvulsionHowever, not all epileptic seizures lead to convulsions, and not all convulsions are caused by epileptic seizures.
My theory, and I say that again theory, not fact, is that when the brain becomes starved of nutrients a fit occurs. The reason I believe it could be nutrient starvation is due to something a person told me about their husband and fitting. He took fits when drinking beer, but did not fit when drinking rum. You will find rum has 6 times more calories than a standard beer. So when the blood has more nutrients it prevented fitting in this case.
So what could help reduce fitting
Increased Brain Energy
If it turns out to be true that nutrient starvation to the brain is the cause of fitting, then increased blood energy, and brain food could help to reduce fitting.
http://www.epilepsyfoundation.org/aboutepilepsy/whatisepilepsy/science/seizuremechanisms.cfmif the discharge of electrical energy has sufficient power and affects enough neurons, it will produce symptoms characteristic of the area in which the discharge took place. The result could be a sudden muscle jerk, an abrupt fall, a distorted vision. If the disturbance flashes across the whole brain at once, it could produce a convulsive seizure, temporarily disrupting many of the functions of the brain.
One word I got when I prayed was TriGlycerides. I am not sure whether TriGlycerides are a good or bad thing with regard to a blood flow, energy balance. TriGlyceride releases much more energy into the blood preventing tiredness, a symptom preceding and accompanying low heart function, as it releases "twice as much energy into the blood as does as carbohydrates and proteins" (Wiki, TriGlyceride 2007) specifically brain food glucose when broken down by glycerol. Blood starvation to the brain I believe can be overcome by enriching the percentage of available energy in the blood, but having increased levels of TriGlycerides may not be wise. Too many TriGlycerides can cause the clogging of ateries, which would be counter productive in regard to blood flow. One thing that may be useful if this theory is correct is to monitor TriGlycerides excessively low levels would mean a need for more food, and energy intake, levels that are too high are also probably counter productive.
Energy release form TriGlycerided is important to this theory. Elevated levels of amino acids increase Glucagon to break down TriGlycerides, as would be seen after consumption of a protein-rich meal. Foods with amino acids are the building blocks of protein. That means they are responsible for strength, repair and rebuilding inside your body. Your tissues, your cells, your enzymes and your brain all get their nourishment and protection from amino acids. Studies have shown that the best way to get all the essential amino acids not made by the humans is to eat animal protein. Meat, eggs, and dairy are the most common sources of these important building blocks. You could also consider taking an amino acid suppliment.
As I mentioned previously, a person I was told about has epileptic fits during alchahol (beer) consumption, but not when drinking rum, not being an alchahol drinker I looked up some nutrition information from a site rum apparently has 6 times more calories than a standard beer per ounce. e.g. 10c compared to 64c, per 1 fl oz, or 64c / 12c 1 fl oz (Calories in Alcoholic beverage, 2007). As they are both similar in substance, but one distilled, with more energy. This further shows additional to our initial research that energy is a primary factor in reducing the likely hood of a fit. I doubt the person is doing any thing different when drinking beer than when drinking rum, watching TV or at the pub, should be at church more fun any way, I.e. a factor is the available energy.
Adiquate levels of Magnesium are also needed for energy production. A study, published in the March 2001 issue of the journal "Brain Research Bulletin," reveals that low levels of magnesium ions in brain tissue lead to reduced production of energy.
So basically any method to increase brain energy would be benificial.
Sodium Magnate
Sodium Magnate is not a real chemical, but its name implies the mixture of Sodium (Salt) and Magnesium.
The Use of Salt
If my theory is correct, increased blood pressure would help to get blood to areas of the brain damaged by brain injury due to more pressure forcing blood through restricted blood flow pathways. An increase in Sodium increases blood pressure. Also increasing blood pressure via the bodies natural metabolism, and heart strength, via exercise could be beneficial. Also drink lots of nonalcoholic fluids. Limit alcoholic beverages.
The Use of Magnesium
Magnesium has been known to reduce fitting in women during childbirth, and is also know to be important in the creation of new blood cells, and is important in energy creation. There is also a theory that people with epilepsy are often Magnesium deficient. See below:
- Can prevent cardiac arrhythmia irregular heart beat.
[*]Treatment (and sometimes prevention) of seizures in eclampsia, for which it is the most effective therapy (Wiki, eclampsia, 2007). As a note we believe that eclampsia is caused by the loss of blood caused during child birth.
[*]Cardiology Branch, National Heart, Lung, and Blood Institute, National Institutes of Health, Bethesda, MD 20892 (National Institutes of Health, 1990) investigated the role of extracellular magnesium on capillary endothelial cell migration and proliferation, i.e. creation of new blood cells, components of endothelial cell function that play an important role in angiogenesis and wound healing. Cell proliferation was also inhibited by very low magnesium concentration.
[*]The following post appeared on an epilepsy forum regarding the possible stoping of their sezuires due to Magnesium. The post follows: Have any of you tried magnesium supplements and found them to be helpful? I have been doing some research and come across a theory that many people with epilepsy are magnesium-deficient. I realized that I have not had a seizure for 9 months, and I have been taking Rolaids for the past year. I have been taking them for the calcium content, but they also contain magnesium. Any thought on this?
[*]Individuals with low levels of magnesium in the muscles use up more energy even during moderate physical activity and, therefore, tire easily, according to a study conducted by the U.S. Department of Agriculture. The researchers of the study suggest that low dietary intake of magnesium reduces the level of the mineral in the blood and muscles and can lead to poor athletic performance. Another study, published in the March 2001 issue of the journal "Brain Research Bulletin," reveals that low levels of magnesium ions in brain tissue lead to reduced production of energy and may cause the headaches associated with migraines. Some animal studies, such as the one published in the March 2009 issue of the journal "Applied Physiology, Nutrition and Metabolism," reaffirm that magnesium supplements may improve blood energy metabolism and exercise performance.
So that is it, it is possible that the word given to me in prayer “Sodium Magnate”, refers to a medication that increases blood pressure, boosts energy creation, and increase creation of new blood cells. There is enough evidence to suggest that Epilepsy could be related to blood flow. So in theory it is possible Epilepsy is the bodies way of trying to get blood to the brain easier, by removing the gravitation downward force on blood flow, by causing a person to lie horizontally, in an attempt to supply more energy to the brain when low levels are detected.
:agree: I've had many CP seizures while sitting and some while walking, standing. How could we possibly lie flat while convulsing?A “fit” does not make the body lie flat to lessen gravitational pressure on blood flow. First of all of that were true then all epileptics would have convulsive seizures & they don’t. The majority are partial non-convulsive seizures so that assumption doesn’t apply. Secondly, when convulsing people do not lie flat, they are busy flailing and third, we are built in a way that makes it easy for blood to circulate with minimal gravitational resistance. If there was more force to fight gravity then we’d feel the blood rushing to our heads and feet every time we lay down to sleep.
My father suffered a stroke 11 years ago and as a result, he may have night seizures (my mother isn't sure). But his dr. did put him on Clonopin, not for seizures, but to calm him.First off you have to remember that you listed many things that might cause a seizure but that does not mean they are epileptic seizures which may have very different causes & properties. http://en.wikipedia.org/wiki/Convulsion
You are assuming that because loss of blood might trigger a seizure in non-epileptics that increasing blood flow can cure epileptics. Just because that is 1 thing that causes seizures doesn’t mean that increasing blood flow is a cure for epilepsy besides, You have to remember that lot of other things can cause seizures too.
No research says cardiovascular disease occurs more in epileptics though CV disease can aggravate seizures in people with epilepsy. Don’t assume that one means the other. http://professionals.epilepsy.com/page/cardiac.html
Also, irregular heart beat is a symptom of a seizure. It is not the irregular heartbeat that causes the seizures.
What you said about people healing incorrectly or cellular pathways ceasing to operate at all is so far from the reality of human biology that I suggest you take an introductory biology course to understand how off base your claim is.
You have to realise that just because your friend had a seizure after drinking beer doesn’t mean it was the beer that caused it & just because he didn’t have a seizure after drinking rum doesn’t mean that there was something in the rum suppressing the seizure either. Those are pretty big assumptions that you have not validated.
And too many triglycerides along with carbs can bring on lots more problems.You’re right that triglycerides are fats that store energy and have even been used in a specific diet to help childrens seizures but we get enough triglycerides. Overall, we actually have been eating too many & that’s why we get fast which drains us of energy & lessens circulation.
A “fit” does not make the body lie flat to lessen gravitational pressure on blood flow. First of all of that were true then all epileptics would have convulsive seizures & they don’t. The majority are partial non-convulsive seizures so that assumption doesn’t apply. Secondly, when convulsing people do not lie flat, they are busy flailing and third, we are built in a way that makes it easy for blood to circulate with minimal gravitational resistance. If there was more force to fight gravity then we’d feel the blood rushing to our heads and feet every time we lay down to sleep.
What you are saying is that because something looks similar to a seizure (fit) then it must be the same or related & that is not true. Even in your quote it said that it can be “difficult to distinguish from epilepsy” meaning that it is NOT epilepsy and that some patients might inappropriately receive anticonvulsants.
You are assuming that because loss of blood might trigger a seizure in non-epileptics that increasing blood flow can cure epileptics. Just because that is 1 thing that causes seizures doesn’t mean that increasing blood flow is a cure for epilepsy besides, You have to remember that lot of other things can cause seizures too. No research says cardiovascular disease occurs more in epileptics though CV disease can aggravate seizures in people with epilepsy. Don’t assume that one means the other.
What you said about people healing incorrectly or cellular pathways ceasing to operate at all is so far from the reality of human biology that I suggest you take an introductory biology course to understand how off base your claim is.
You’re right that triglycerides are fats that store energy and have even been used in a specific diet to help childrens seizures but we get enough triglycerides. Overall, we actually have been eating too many & that’s why we get fat which drains us of energy & lessens circulation.