I am also sorry this is so late. All my sympathys are with you. And in time may you see only the joy that she has brought to your life. I know that there is no way of seeing that now. But in time ...in time. Teresa
November 30th is Tina's 27th birthday. Once again we will celebrate the beginning of this special life with releasing of balloons and a cupcake. We all miss her so very much and know that she is watching over us everyday!!
(crying) The video grabbed my heart. For you, for Nicole, for others who have lost a loved one early in life. I am so sorry. Thank God you have Nicole to nurture and love as you did and would Tina. I have a daughter Tina and to lose her would crush me too. Just losing my brother to cancer has been an eternal stab to my heart. God bless you, dear, and may you sleep well tonight and may you and Nicole have good dreams of your Tina. Does Nicole remember her mommy? I forgot if you said how old she was when Tina passed. On my Myspace, I feel I need to really update it with :e: again and spread the word even in that little way. I wish I could post your video, it would tell the story. This is a REAL thing that people need to be aware of, even medical personnel. BLESS YOU BLESS YOU BLESS YOU (tears)BLESS YOU BLESS YOU BLESS YOU BLESS YOU BLESS YOU BLESS YOU BLESS YOU BLESS YOU BLESS YOU BLESS YOU BLESS YOU BLESS YOU (tears)BLESS YOU BLESS YOU BLESS YOU BLESS YOU BLESS YOU BLESS YOU BLESS YOU BLESS YOU BLESS YOU
Nicole was 4, almost 5 (27 days away from her birthday) when her mom died. Nicole remembers her mom because we talk about her all the time. She has a pic of her mom on her headboard and everynight gives her a kiss and hug after her prayers. Nicole was the one that found her mom and went to the neighbors to let them know that Tina would not wake up. Although the pain is always there, God has given a passion to help others with E, learn everything I can and to share with everyone I know and meet.
Who are you on My Space? Do I already have you as a friend? If not, I would love to add you as my friend. You can post my video anywhere you would like to help people understand E. If you would like, I can put any of my videos on disk and send them to you also. You can PM me if you would like to have CD's and I will give you my email address so you can give me your address to send them to. I want my videos to not only be viewed, but to be used to rasie awareness and funds for E. This is the mission God has given me so maybe I can help save one life and then her death will have a purpose.
Because of the Internet and places like this forum, I realized that Tina is the most famous person I know. There are people around the world that know who Tina was because of video's and posting.
I just happened upon this thread. I don't think I quite expected to encounter anything this emotional here. It has obviously crossed my mind a number of times that I could die from this but it really hits home hard to read your posts and the posts of others here.
It's very touching to see your dedication to the memory of your daughter.
My deepest sympathies to you. I know from reading these few posts that the world lost someone special.