Belinda1961
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I'm through with trying any new drugs. I'm going to stay with what I'm taking and now I'm
coming off Diamox.
Belinda
coming off Diamox.
Belinda
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My son has been on Keppra and Lamictal for years. He went as long as 9 months seizure free.
Then in February of this year he had a seizure. Then another in April. And on June 2 he had the scariest seizure I've ever witnessed - thought he would die in my arms. At that time, his neuro increased the Lamictal. Another seizure on June 12 - not as bad as the June 2 - and another increase in Lamictal.
With the June seizures, blood work was done and showed elevated liver enzyme tests. Follow up blood work a week later and the liver enzyme tests were even higher. Neuro reduced Lamictal back to what it was before June 2nd.
Tested for hepatitis - negative.
Now neuro is reducing Lamictal and starting him on Vimpat. Today's the first day of the gradual elimination of the Lamictal and increasing Vimpat to a therapeutic level.
I'm keeping my fingers crossed the Vimpat doesn't cause any side effects and gets him seizure free again.
Will keep you all updated as this unfolds.
My son has been on Keppra and Lamictal for years. He went as long as 9 months seizure free.
Then in February of this year he had a seizure. Then another in April. And on June 2 he had the scariest seizure I've ever witnessed - thought he would die in my arms. At that time, his neurologist increased the Lamictal. Another seizure on June 12 - not as bad as the June 2 - and another increase in Lamictal.
With the June seizures, blood work was done and showed elevated liver enzyme tests. Follow up blood work a week later and the liver enzyme tests were even higher. neurologist reduced Lamictal back to what it was before June 2nd.
Tested for hepatitis - negative.
Now neurologist is reducing Lamictal and starting him on Vimpat. Today's the first day of the gradual elimination of the Lamictal and increasing Vimpat to a therapeutic level.
I'm keeping my fingers crossed the Vimpat doesn't cause any side effects and gets him seizure free again.
Will keep you all updated as this unfolds.
Update.... son went 3 months seizure free and we were sooooooooo hopeful he would make it to 6 months so he could have surgery on his shoulders.
But alas we had a huge snow/ice storm and power failure in the middle of January here and I think the stress from that triggered a seizure. (stress is a definite seizure trigger for him and he's wound pretty tight anyway).
So his neurologist increased his Vimpat to 500 mg/day (300 in AM and 200 in PM). He's still taking Keppra as well as a relatively low dose of Lamictal.
We're hopeful still...... he's not had any side affects from Vimpat at all.
It's just so frustrating because his right shoulder is in such bad shape that he can't do much of anything with it or it dislocates. His left should is damaged too but only dislocates when he has a seizure.
January 18th was the last seizure date so now he'll be eligible for shoulder surgery around July 18th if no seizures between now and then.
*fingers crossed*
:?