mglynn2
New
- Messages
- 50
- Reaction score
- 0
- Points
- 0
I got a VNS implant in 2007...and had it turned off in 2010.
I have been a singer my whole life so I asked my doctor if I would still be able to sing after I got the implant. He said it would just take a little bit of adjusting and then I would be back to normal
He was wrong.
I was not able to sing at all anymore and had to change my major from music education to business. Also anytime my heartrate got up, I would start wheezing for air, especially when it turned on, so I couldn't do too much physical activity. At first it was programed to go off every 5 minutes for 15 seconds but by 2010 it went off every 3 minutes for 30 seconds and when it did go off my voice sounded smaller and more hoarse. I was hospitalized for testing and one day I had so many seizures the doctors said they stopped counting at 200. Afterwards, when I had an appointment with my Neurologist he said that if my VNS were working it would have prevented at least some of that, so we turned it off and now I am wrestling with whether to get it taken out or not. It's just sitting in there doing nothing and it doesn't bother me unless I get hit there, then I'm down for an hour because it's painful. However, I'm just concerned about any long term effects.
I hope everything works out for the best for you Jeff!
I have been a singer my whole life so I asked my doctor if I would still be able to sing after I got the implant. He said it would just take a little bit of adjusting and then I would be back to normal
He was wrong.
I was not able to sing at all anymore and had to change my major from music education to business. Also anytime my heartrate got up, I would start wheezing for air, especially when it turned on, so I couldn't do too much physical activity. At first it was programed to go off every 5 minutes for 15 seconds but by 2010 it went off every 3 minutes for 30 seconds and when it did go off my voice sounded smaller and more hoarse. I was hospitalized for testing and one day I had so many seizures the doctors said they stopped counting at 200. Afterwards, when I had an appointment with my Neurologist he said that if my VNS were working it would have prevented at least some of that, so we turned it off and now I am wrestling with whether to get it taken out or not. It's just sitting in there doing nothing and it doesn't bother me unless I get hit there, then I'm down for an hour because it's painful. However, I'm just concerned about any long term effects.
I hope everything works out for the best for you Jeff!