Aug 13) Well hello my family! This is more than likely the last post for this journal. Since January I have been dealing with this VNS device. Finally after many attempts is finally shut down and ready to be removed.
My advice: Make sure that you do all of your research before you opt for the VNS. The side effects that they tell you may occur will occur. After surgery you will not have your normal voice, or true voice again. Again, if you are a business person, someone who talks for a living, or needs to be loud at a work site, this device is not for you unless absolutely necessary. FYI, it will not stop those with bi-hemisphere epilepsy. (Like myself.) If you have epilepsy on one half, you might have better luck. I look at the VNS as a last resort. And yes, this is only my opinion. There are many on this site with devices, and they are a life saver. It may be a miracle for you. During its trial my seizures doubled and I even had a grand mal after it was turned up. Since it has been off, my issues have dropped to a third of the episodes. As I spoke will my neuro, I told him that I am done messy with it. I am on a dosage that I can deal with. I have breakthroughs all month long, but I can handle it. As many know, after you go so long without proper diagnosis (Myself 20yrs) you really do get used to. I will go back to living my life with the usual situations. I know it sounds crazy, but I have no trouble dealing with @ 10 a month.
It is our duty as epileptics to rule the world!!!! (Just kidding lol) Its our duty to live life to the fullest. Do not stop enjoying life. Just do the research friends. And if you do go with the VNS, then I hope it truly does work out for you. I will always be here to hear your success and support you through it all, as everyone will. And if it should be a nightmare or trouble, then I will be here to support you through it.
Thank you for keeping up with me, and now I can finally visit everyone in a different forum. lol
Thank you again, and God bless. -Jeffrey T Brown.