Little about me...sorry so long....its nice to get it out...
I had my first seizure when I was 21yrs old (09/2000)while I was sleeping. I was told to see my doctor, so I got up got ready and layed on the couch waiting to go and next thing I knew I woke up to the paramedics standing over me. I went to the hospital and they ran all their tests and didn't find anything and no one had any answers for me. Just told "take this medicine". I was than put on Dilantin.
Well after about 1 1/2 yrs I decided to go off my medicine. That didn't go so well, I woke up to my ex telling me I had just had another seizure. I went back to my neurologist and he told me to go back on my meds, so I did....
I hated taking a medicine and no one could give me a reason why, besides "you have Epilepsy".
I got pregnant in 2003 and everything went great and I had a healthy baby boy. I again stopped taking my medicine a year or so after having him. I didn't have any seizures and was happy to be off the meds...
I started having Deja Vue spells which I couldn't figure out. My mom thought I was crazy and didn't understand it. I just blew it off, thought it was stress...
I got pregnant again in 2007 and I had a healthy baby girl...I had again stopped my meds....and thing were fine UNTIL...
June 2009 I had a seizure while in the shower....I started to have a "Deja Vu" spell and next thing I knew I woke up laying in my bed and not sure how I got there. I knew I had a seizure because my tongue hurt like hell. I later checked the shower and there was blood in there.
I had to go back to the doctor and I mentioned to my neurologist about the deja vu spells and told him I had done some researching online and found out it had to do with seizures and he was like "yep"....I had never thought to mention this to him sooner..opps... I am now on Levetiracetam (which is the generic Keppra - much cheaper and works just as great for me)
I went back on my meds and was fine. I thought I would try to cut my meds in half so they would last long (I was paying $20 for 3 months last yr and now I will be paying $263 for 3 months this year).
Thanksgiving morning I started having a Deja Vu spell in the shower again and tried to get my mind off of it...Well I woke up to my husband holding him and telling me I just had a seizure. I hit my head really good this time and bruised my knee...Talk about a horrible day... :crying:
I now have come to the realization that I have to take this medicine no matter what....I hate it, but I know it is what is best for me....
I feel so bad for my husband to have witnessed my last seizure....I unfortunatley witness my 2yr old having a Febrile Seizre last month and that took a few days to get that image of of my head.....
Looking forward to chatting with others and getting great advice!!!!! :yippee:
I had my first seizure when I was 21yrs old (09/2000)while I was sleeping. I was told to see my doctor, so I got up got ready and layed on the couch waiting to go and next thing I knew I woke up to the paramedics standing over me. I went to the hospital and they ran all their tests and didn't find anything and no one had any answers for me. Just told "take this medicine". I was than put on Dilantin.
Well after about 1 1/2 yrs I decided to go off my medicine. That didn't go so well, I woke up to my ex telling me I had just had another seizure. I went back to my neurologist and he told me to go back on my meds, so I did....
I hated taking a medicine and no one could give me a reason why, besides "you have Epilepsy".
I got pregnant in 2003 and everything went great and I had a healthy baby boy. I again stopped taking my medicine a year or so after having him. I didn't have any seizures and was happy to be off the meds...
I started having Deja Vue spells which I couldn't figure out. My mom thought I was crazy and didn't understand it. I just blew it off, thought it was stress...
I got pregnant again in 2007 and I had a healthy baby girl...I had again stopped my meds....and thing were fine UNTIL...
June 2009 I had a seizure while in the shower....I started to have a "Deja Vu" spell and next thing I knew I woke up laying in my bed and not sure how I got there. I knew I had a seizure because my tongue hurt like hell. I later checked the shower and there was blood in there.
I had to go back to the doctor and I mentioned to my neurologist about the deja vu spells and told him I had done some researching online and found out it had to do with seizures and he was like "yep"....I had never thought to mention this to him sooner..opps... I am now on Levetiracetam (which is the generic Keppra - much cheaper and works just as great for me)
I went back on my meds and was fine. I thought I would try to cut my meds in half so they would last long (I was paying $20 for 3 months last yr and now I will be paying $263 for 3 months this year).
Thanksgiving morning I started having a Deja Vu spell in the shower again and tried to get my mind off of it...Well I woke up to my husband holding him and telling me I just had a seizure. I hit my head really good this time and bruised my knee...Talk about a horrible day... :crying:
I now have come to the realization that I have to take this medicine no matter what....I hate it, but I know it is what is best for me....
I feel so bad for my husband to have witnessed my last seizure....I unfortunatley witness my 2yr old having a Febrile Seizre last month and that took a few days to get that image of of my head.....
Looking forward to chatting with others and getting great advice!!!!! :yippee:
Last edited: