StillDancing,
Oh, brother. I'm so sorry you have to deal with DSHS. Someone here was also talking about being overpaid. They lived in a different state than you do. It's hard enough to be disabled without DSHS adding more stress on top.
Don't worry about the colonoscopy. They'll drug you up just enough so that you don't care what they are doing. (light conscious sedation) I've had it done and it's really okay.
The VNS... oh, wow. Don't know how you are dealing with that. I'd be nervous, too. Hey, everybody on here. Who has a VNS and can describe how they felt after the procedure? What kind of sedation/anesthesia did they use? I'd start a separate thread on this topic. Definitely worth it's own conversation.
How am I doing? Went to neuro yesterday about IIH (other neurological disorder). Instead of upping the meds that get my CSF pressure under control, he drugged me up with more pain meds. Not the outcome I was looking for. I asked for more meds to lower pressure instead, but he really felt this was necessary. He wants to separate out how much of the pain could be made worse by stress due to the pain (kind of a bad self-feeding cycle), and see if it helps if the pain is 100% under control. I don't want the drugs. Don't want to be drugged up all the time. 'Nuff said?
Otherwise, fine. Seizures are doing pretty well. 300mg lamictal seems to be the magic number.
Hey, drugged up on narcotics and muscle relaxers I sleep like a baby. You guys probably won't be seeing much of me in here at night any more. I keep telling myself that there are lots of 20 years olds who would pay good money to feel like this. lol....
On a side note, I lock my meds up after every dose, just in case my neices or neighbor kids come over. Anybody else do that?
