Just an update on my RNS for anyone with interest: The responsive neurostimulator I had placed in my skull last year seems to be helping with seizures that impair consciousness. It has not controlled my seizures. I still have them, but they are less.
Looking at my seizure diary from 1998...
I am at home from hospital feeling almost normal after a surgery of around 5 hours and a stay of two nights/ three days. I now have a responsive neurostimulating device implanted within my skull with two cortical strip leads and two depth leads implanted close to my epileptic foci.
Until I see...
Oh man! I see the neurosurgeon on Wednesday and hopefully make a date for implantation of the RNS Neuropace within a few weeks. I have waited for this for six years as my attempt for the clinical trial messed up. I am normally a stoic person but for the last week since this appointment was set...
The Neuropace RNS brain implant has been approved by the FDA.
You can read the NYTimes article here: http://www.nytimes.com/2014/03/25/health/easing-epilepsy-with-battery-power.html?ref=health&_r=0
The article discusses the device, and profiles someone who's had a good experience with it...
A friend just e-mailed me this link.
http://www.nytimes.com/video/world/asia/100000002784817/nyt-now-malaysia-on-fate-on-flight-370.html?playlistId=1194812888716
Hi
I have done over a year of testing & found out that I am not a candidate for a temporal lobectomy. Pretty bummed out... Anyways my doctor mentioned neuropace. It will be up for FDA approval in a couple weeks and he thinks I might be a good fit. I was wondering what the surgery is like...
I spoke w/ my neurosurgeon's coordinator for the Neuro Pace and I found out some disturbing information. First off, she told me that I was a good candidate to have the Neuro Pace surgery. I thought this was great until she told me that the Neuro Pace has a battery that needs to be replaced every...
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