Aura's without seizures, more frequent or less on meds?

[AngelwithDentedHalo]

Since being on meds, does anyone's aura's become more frequent or less frequent? I believe I first had an aura years ago in Walmart long before I ever had a seizure and I told the Neurologist about it and he seemed to think it was related but not concerning too much.

Since I had the seizure and been on meds, haven't really had another seizure but still have aura's and haven't had them in awhile but have had two or three in last 4 months. Doesn't go far though. Who is more frequent on meds or less frequent?

 

[Maisy]

can't really tell I still get auras but no seizures but im thinking less as used too get them every other day but thinking about it don't think j do now

 

[AngelwithDentedHalo]

Well, I think Anti Seizure meds reduce the chances of seizures, doesn't necessarily eliminate them and perhaps still having aura's on meds means the seizure activity is still there but supressed with the meds.

 

[Maisy]

Yeah but its good because means meds are working

 

[momof3boys]

Well, I think Anti Seizure meds reduce the chances of seizures, doesn't necessarily eliminate them and perhaps still having aura's on meds means the seizure activity is still there but supressed with the meds.

:agree: Being on the Keppra XR controls my seizures, but I will every now and then feel like an aura is coming on... I just dont go into a seizure. But its times where I dont get enough sleep, or due to stressful situations that come about.

 

[qtowngirl]

Yes that definately means there is seizure activity... I wish more neurologists would elaborate with their patients... an aura IS a seizure, a Simple Partial Seizure.
If you are having auras, or more than normal, your medication isn't doing its job and should prob. be upped or changed.

 

[jyearta]

Yes that definately means there is seizure activity... I wish more neurologists would elaborate with their patients... an aura IS a seizure, a Simple Partial Seizure.
If you are having auras, or more than normal, your medication isn't doing its job and should prob. be upped or changed.

:agree:

 

[CQ:)]

Yes that definately means there is seizure activity... I wish more neurologists would elaborate with their patients... an aura IS a seizure, a Simple Partial Seizure.
If you are having auras, or more than normal, your medication isn't doing its job and should prob. be upped or changed.

:agree:

I used to take a lot of auras (or partial seizures), sometimes they would lead to a complex partial but other times they wouldn't. Even when I was on more then 1 AED & at 1 time high dosages of 3 AEDs I still had auras.

 

[Lucille]

Hi I am a new member,
My daughter has had Absence seizures since she was 12-13 months old(not text book). A few years ago during an in-patient EEG the doctors were able to diagnose her with eyelid myoclonia or jeavons syndrome as well. We were told that she would probably develop infrequent tonic clonic seizures. Well, it looks like she has begun auras with a simple partial but I was reading above that an aura is a simple partial. I understand that auras can be different or the same on an individual basis. But our daughter has only had it twice so far with a few months in between but the second one was more severe she felt that she was going to pass out, was dizzy, sick to her stomach, at first everything looked like the tv on a bad channel, black, white, and fuzzy. Then she said everything looked like it was puzzle pieces not whole. She than became stiff in her arms but when I tried to assist her in sitting down she could not focus on where the seat was and she felt stiff when I was holding her/directing her to sit. She had to lay down and close her eyes. She was pretty out of it and when she was able to focus she was pretty scared. My question is, I suppose, do the simple partial seizures change each time, has anyone experience them to turn into tonic clonics?

 

[jyearta]

I have had auras - simple partials that were very intense, lasting longer, and had many in one day. I don't think this the same as a CT.

My now don't come that often, they are not as intense and they last only a second or two. This has improved in the last several years for me. It is only when A trigger has come my way, such as lack of sleep, stress, infection, new meds. be it over the counter or presc.

 

[qtowngirl]

For almost everyone, once simple partials begin they stay the same every time. Mine have always been the same, with a few feelings added in just for fun about 15 years in. The brain can only take so much.
And yes, I have had a simple partial before all tonic-clonics except one.

 

[RunningGirl85]

Yes that definately means there is seizure activity... I wish more neurologists would elaborate with their patients... an aura IS a seizure, a Simple Partial Seizure.
If you are having auras, or more than normal, your medication isn't doing its job and should prob. be upped or changed.

My neurologist said the same thing (well, I all ready knew they were seizures), which is why he wants to do more testing on me before he changes medication, and it is also why I can't drive, even though I haven't had any T/C seizures since April. I asked him if medications could make it worse, and he said no, but they might be stopping the partials from turning into more (everything got a LOT worse after my last T/C seizure - I think I'd be much worse off if I hadn't been put on medication so soon).

 

[RunningGirl85]

Hi I am a new member,
My daughter has had Absence seizures since she was 12-13 months old(not text book). A few years ago during an in-patient EEG the doctors were able to diagnose her with eyelid myoclonia or jeavons syndrome as well. We were told that she would probably develop infrequent tonic clonic seizures. Well, it looks like she has begun auras with a simple partial but I was reading above that an aura is a simple partial. I understand that auras can be different or the same on an individual basis. But our daughter has only had it twice so far with a few months in between but the second one was more severe she felt that she was going to pass out, was dizzy, sick to her stomach, at first everything looked like the tv on a bad channel, black, white, and fuzzy. Then she said everything looked like it was puzzle pieces not whole. She than became stiff in her arms but when I tried to assist her in sitting down she could not focus on where the seat was and she felt stiff when I was holding her/directing her to sit. She had to lay down and close her eyes. She was pretty out of it and when she was able to focus she was pretty scared. My question is, I suppose, do the simple partial seizures change each time, has anyone experience them to turn into tonic clonics?

Yes, they can move onto Tonic-Clonics. I have mostly simple partials with the occasional secondary generalization (tonic-clonic). What you are talking you are talking about feels similar to how I've felt before my tonic-clonics. I've had it happen other times since on medications, but they never went beyond somewhat intense partials. I am guessing though the medications haven't been one hundred percent effective, they have stopped the worst of it.

 

[Lucille]

Thank you all so much for your quick replies. I know that our daughters absence seizures( they used to be hundreds a day, then dozens and now a few to dozens a day is the norm) make our daughter very exhausted by the late afternoon/early evening. How tired would you say I should expect her to be after a simple partial directly after and the next day.

I ask because of course she should be tired afterwards but how tired should I expect her to be the next day. Of course with daily absences, and ema I am guessing when a the simple partial takes place she will be even more exhausted the next day than usual.

It seems like the exhaustion takes over.

Thank you so much for sharing your experiences with us!

 

[AngelwithDentedHalo]

I'm not sure they are auras cause they are so quick

 

[Lucille]

I am not sure what to call it. The neuro on call said it could have been an aura or a simple complex. We are just confused because along with symptoms of a partial but she saw black and white spots and then everything was broken up like puzzle pieces. She had a hallucination that she saw herself from the back just and was weak and disoriented. The last time she saw some colors making waves in front if her. Both situations accompanied dizziness, a feeling of being unwell, an upset stomach, weakness and feeling like she was going to fall.

 

[Hand of Blood]

i only got them when i went on meds! and my meds went up after i had my son they got 10 times worse, but of course neros dont believe me

 

[RunningGirl85]

I am not sure what to call it. The neuro on call said it could have been an aura or a simple complex. We are just confused because along with symptoms of a partial but she saw black and white spots and then everything was broken up like puzzle pieces. She had a hallucination that she saw herself from the back just and was weak and disoriented. The last time she saw some colors making waves in front if her. Both situations accompanied dizziness, a feeling of being unwell, an upset stomach, weakness and feeling like she was going to fall.

I don't get the colors but I get the hallucinations where I'm watching myself and the feelings she gets. Did they say where her seizures start (for example left temporal lobe).

Sent from my SCH-I535 using Tapatalk 2

 

[qtowngirl]

Morning Lucille,
We should give Angel her thread back so I'm going to start a new one with some info for you, cheers

 

[Lucille]

Hello,

Hand of Blood,

I think I understand the frustration of working with doctors. Our daughter began Tegretol in second grade and she began to have drop seizures. I cannot remember the dosage but we started low. We stopped it pretty quick. It is ridiculous that your doctor isn't listening to you! Our current Neuro is aware of the side effect of Tegretol. Our daughter has had 5 Neuros over the last 8 years. One moved without notice, one was not equipped to handle her situation, one was great but moved, one was new with a stiff way of dealing with patients and then our current doctor who is great. By the way, our experience with her primary pedi was that it took 5 1/2 years to recieive the referral we needed to diagnose her. And, the pedi gave us 3 referral after all that time. The first, and the pedi's recommendation was to a child psyc. the second was to a eye specialist and the third but as the doctor put it, less likely to be needed, was to a Neurologist. I was very upset at the pedi after the diagnosis. I demanded an apology and found another doctor for our daughter. That pedi was our family pedi for many many years as we have three older children. I was very disappointed in her. I hope things improve for you!

Runninggirl85

Our daughter was diagnosed with Primary Generalized Seizures. Her 3 out-patient and 2 in-patient EEGs showed that seziure activity was all over her brain. The 1st in-patient test showed there may have been some activity in the right side but there was wide spread activity. I did the usual research after the seizure and from her detailed description it seems that her auditory, visual, out-of-body, muscle tightness, disorientation, is going to be a challenge to figure out the location in the brain without an EEG during a simple partial. I have a feeling that the Tonic Clonic's the doctor warned us to be prepared for are right around the corner. She is taking 1250mgs of Zarontin per day and is highly sensitive to side effects. Her usual seizures are not under control as I mentioned. She has the eyelid myoclonia all day at any time as it is induced by light. She has the absences all day with triggers being, STRESS-school work, projects, homework especially, insomnia (from med most lightly), extreme exhaustion (from seizure activity and lack of the sleep she needs, illness, and probably some more I cannot think of at the moment, but those are the most important. We probably have another in-patient EEG in her near future, .