seizures

  1. M

    Dangerously high blood pressure during seizure

    I have had 2 seizures and during my 2nd seizure my bp was 225/110 and that is stroke inducing dangerously high. I wonder how I can survive multiple seizures if thats the result? Is this rare? Do other have this? Is there a fix? Blood pressure ok to moderate normally.
  2. X

    Absent Seizures

    Hello everyone, I have been diagnosed with absent seizures in October of 2017 after my first grand mal seizure. After this event, I had an eeg test and it was pretty obvious that I am experiencing multiple of absent seizures; however, they were so short that no one has ever witnessed (and I am...
  3. T

    Parent/Caregiver of children with Generalized Epilepsy: Help with safety concerns for older children with Epilepsy

    I don't really know where else to start but at the beginning so there's no way to make this short. I'm hoping to find out what other parents do in similar situations and finally reaching out for support. My husband and I have been together for 25 years with no family history of epilepsy on...
  4. S

    Coming Off Keppra

    Hey everyone, new here, Last Tuesday about 10 days ago my mom had what the neurologist called a seizure. No seizure history before, not on any medications, all CT, MRI, EEG tests came back spotless. Turns out she had a TIA due to a UTI, not a seizure. That neurologist put her on Keppra...
  5. edepew151

    Suggestions for alternative treatments? PLEASE!!!

    Alright guys, I really need your help and opinions here. I have had partial and tonic clonic seizures for 13 years, and tried tons of meds in even more combinations and doses. If I miss one dose of my meds, I'm guaranteed to have a tonic clonic that day. My new doc was thinking I could have...
  6. Hand of Blood

    Dont know what it is...

    Hey guys, Its been a while since i posted But im wondering if anyone gets what I get, its hard to explain but i will try Anyway ive had tonic clonic sezures since i wss 17 been seizure free now for 6 years ( i think ) But always had another feeling but lately its been bad There is 2 types of...
  7. R

    Olfactory hallucinations?

    I haven't been around here for awhile. I'm mostly controlled on Topamax at 500mg/day, but to be truthful, I have a few other conditions and sometimes I'm not sure what is the epilepsy and what's not, so sometimes I just deal with the symptoms and am thankful when they go away. As a history, I...
  8. J

    help with third day of simple partial seizures

    Hello, I'm new here and I guess I signed up cause Ive never really talked to anyone else who has had E besides me before. And I always really wanted to. You can kind of explain the experience but unless you have it you wont ever know whats it like. (i just love when my mom tells that I to just...
  9. S

    Struggling to stay awake...

    I've recently had my meds upped due to breakthrough seizures, and the dosage is making me sleep at random times during the day, throwing my sleep schedule out of whack. What are all of your ways to stay awake when medicine exhausts you? I'm going to see my neurologist tomorrow, so I really...
  10. donding

    Aspartame and Seizures

    I've done a lot of research on this subject and even ask a couple of neurologist about this. Most just dismiss it and say there is no connection. Well I think there is a connection. I'll tell ya why. I started having seizures out of the blue in 1994. I have a bunch in one day then I'm good for...
  11. S

    New

    Hello, I have been diagnosed with a seizure disorder for a little over two years. I have generalized tonic clonic, complex partial, simple partial, and absence. Unfortunately, most of the EEGs have come back negative. My neurologist thinks I have psychogenic non-epileptic seizures. I am confused...
  12. R

    New Member

    I began having seizures (that I am aware of) in 2009. I had my first one in June and broke my shoulder blade (Scapula) from the convulsions. I was not in any state of distress at this time. I was rushed to the E.R. with no confirmation of having any abnormality on an EEG. In fact, it was almost...
  13. M

    simple partial nocturnal seizures?

    I often during wakeup at night/morning have numbness/weakness in my left bodypart. Mostly my left arm, but sometimes my whole left side included my left eyelid. I was born with a dysfunchtion in my right temporal lobe. Can it be nocturnal simple partial epilepsy? I have No pinched nerves when...
  14. M

    seizures?

    have i seizures when i waking up from nights and have uncnown panic attacks and raise up from bed and wandering to another room with no reason? i also often have numbness in my left bodysite during night sleeps in some seconds without any pinched nerves. i also have a dysfunction in my right...
  15. Eggbertx

    Seizures permanently having negative/permanent(?) affects on memory

    I could be wrong and spouting incredible amounts of nonsense here, but I've noticed that since I started having tonic-clonic seizures, my memory has been horrible. Well, a fair bet worse than usual. I remember reading something about memories being made by neural pathways (synapses?) in the...
  16. D

    Employer keeps calling 911 when I have a seizure. Is this standard for most jobs?

    I have been diagnosed with psychogenic nonepileptic seizures (PNES), after having 4 normal EEGs. Two were 30 mins, one was a 3-day take home test and the last one was a 5 day VEEG. All were normal. I had a normal MRI as well, but it was 6 mos. after they started I have anywhere from 1-6...
  17. T

    4 1/2 year old son with seizures of unknown cause

    My now 4 1/2 year old son started having seizures in March 2014. The first day he had 3 in one day. Two of them being in the ER where they then transferred us to Pediatric ICU Sutter Memorial in Sac to have further tests done. MRI, CT SCAN, SPINAL TAP, EEG, BLOOD AND URINE TEST all came back...
  18. Mystic

    Hi! I am not sure where else to turn.

    Hi everyone. I am Misty. April 25th I woke up in a really drunk like state (I seriously thought I slept drank or something). Anyways, I stumbled to the bathroom and made it to the couch. All of a sudden I lost hearing, my eye sight went poof. The last thing I remember and felt was that my body...
  19. Alexis

    Auras without seizures, or seizures themselves?

    The past couple months, I've been having some intense auras, without the following tonic clonic seizures. I feel dizzy, have a sort of out of body feeling, pretty confused, and thinking and talking is pretty weird... They last between 15-60 minutes, which is normal. Usually I lose most of my...
  20. I

    Help! Don't know likelihood of epilepsy/seizures

    Hi all, I so appreciate in advance your help. I'm a 27 year old female, and in my life I've had two seizures. The first was when I was fifteen, and had consumed (for the first time in my life) quite a bit of alcohol. The second is a bit more of a mystery. It occurred when I was 19, and I...
Top