You know you have epilepsy if...

[gigi]

you know you have epilepsy...

When you show up for work unscheduled...when you don't show up and a manager calls you and you just think they are asking you to come in on a day off, but you are supposed to be there! When you show up late because you read schedule wrong and greet everyone in a friendly manner and they look at you weird...oops my bad!! A manager has to tell you the same instructions over again in small increments...and again. Bleh. If I only had a brain! My employer knows I have E.

 

[MAB]

Or when you show up 2 hours early. I work along so I could have easily gone home and no one would have realized but I logged in to the computer and send my boss my regular report.

 

[petero]

You know you have epilepsy when:
...
* When you realize that you are sleeping on a bath mat covered in just a towel as a blanket and it is the most comfortable spot in the world.
...

I love it - don't you just love being awoken by the paramedics and some family member, or something, and they're 'screaming' to you "you've had a seizure... just stay calm" and all I can think is "then GTF out of my FACE... and LET me... sleeeEEP... here... on the sidewalk... of the highway's frontage road........ oh... maybe I shouldn't stay here..." but it's the most comfortable 'head-space' in the world, in a way... and I don't want to move at all!
in that regard, being bothered post-ictal is the worst part of epilepsy, IMHO

 

[petero]

when remembering the past few days, one of the few people you refer in the third person is yourself.

lol - I've referred to 'myself' as "it" often
not as in Addams Family cousin, but as the whatever it was

 

[C0urt]

when you have a seizure at work at a restaurant and none of the staff knows what to do, but one of the customers who was trying the place for the first time has seen you have a seizure before in a different restaurant.

 

[Screamy]

When you purchase a hoodie that says 'coping with epilepsy' for $50 but only wear it at home while having seizures.....

 

[Crash]

LOL!!! Screamy do expect my dry cleaning bill through the post,im covered in coffee after reading that first thing!!!

 

[petero]

...your Medical Alert Bracelet has scratches all over it...

 

[C0urt]

you have a medic alert bracelet to match all your clothes

 

[AlexC]

You purchase a medical bracelet. Then purchase a medical bracelet. And purchase a medical bracelet.

 

[QueenieKP]

So true. I have lost mine. The ear bashing I am getting at the youth centre is unbearable.

Q

 

[julienet]

The paper in my medic alert necklace has had that much tipex on it to cope with my changes in drugs it now just flakes off.........in need of new paper I think

 

[petero]

...when you've thrown up so hard you may have 'hit' your prostate gland.

 

[RodrigoDiaz777]

PS: YES I CAN READ THE SMALL FINE PRINT!
fft:

==============================

BRAINY's TOP 10
YOU KNOW YOU HAVE EPILEPSY WHEN ...


10 ) You're on a conversation on the phone and suddenly
you've seized and you've either lost your train of thought
and forgotten what you've said or you're repeating yourself
like you've just called them!

:embarrassed:

9) You come "out of it" and tell everyone that you want
to go home and YOU ARE HOME!



8 ) It's in your head but just doesn't come out of your mouth
when you want to say it



7 ) It's in your head but when you want to WRITE it, well,
umm - I'll stop here.

:agree:

6 ) Your Neurologist and Epileptologist tells you it's all in
your head as if .... we didn't already know that?

onder:

5 ) The most over-used line in Neurology is " Here, Let's try this"
in regards to AEDS ...

:giveup:

4 ) Medical Personnel & Medics as well as others who freaks when
they see a seizure in action and don't know what to do?



3 ) Being wiped out as non-epileptic; and only to find out you're
in the local ER with a major tonic-clonic or went into status or
back-to-back after being misdiagnosed because they couldn't
find anything and all results were 'normal' including the EEG's?



2 ) Having all abnormalities from Scans to EEG's - but only to
be slammed in the face in being told you can't have surgery
and you're refractory / intractable?

:razz2:


1 ) Video Electroencephalograms seems to be a cure-all for
people with Epilepsy ~ hardly ever seem to ever land any
seizures no matter how hard everyone tries to provoke one,
but the moment the patient goes home ... Shish-ka-boom-bah,
go figure - patient gets the seizure (and it's not unusual either)!

:huh:

That video electro-encelphalogram thing? I totally thought that was just me. I spent a week feeling sleepless & terrified, then felt hugely guilty for making my friends sit beside me in shifts 24 hours a day while nothing happened. Then, a couple of days later, I'm in the same hospital's ER having had multiple tonic clonics in the ambulance. So frustrating!

Sent from my DROID BIONIC using Tapatalk

 

[petero]

when you feel like an idiot for needing a "slow day"

 

[julienet]

whenever you have anything wrong with you people say "is it your tablets?"

eg for the past week I have had nose bleeds.

 

[C0urt]

...when you've thrown up so hard you may have 'hit' your prostate gland.

ouch

 

[Belinda5000]

You know you have epilepsy when:

1. you've busted your nose in the shower.

2.fallen hit a chair in ur bedroom busted ur head open and don't remember a thing.

 

[C0urt]

you have a collection of hospital wristbands

(they are for next years halloween costume, I will be an angel of death)

 

[sjconner]

your students tell you to have "notepaper" lines tattooed on the back of your hand and up your arm.

I write notes to myself in the only place I know I won't lose them. I can't keep of track of most of the things they ask for or about.