I can relate to that. I wasn't going to answer the question "what do you do?" because in all honesty, I absolutely hate that question. I've been asked that soooo many times when out with those who DO have a career and DON'T have any health problems. Before the seizures started, I was in the airline industry, working as a ticket agent. My dream was to fly around the world, see people and things everywhere. But I did meet and marry a pilot. Then, I started having my seizures, CP and TC when I was 22 years old and suffered a severe injury because of it. So I was in the hospital for several months and had to have multiple surgeries. After I recovered from that, we moved far away from family. We had two kids and my seizures got worse, so I didn't work and haven't worked because of the miserable seizures, depression, diabetes, etc. I also had a temporal lobectomy and was seizure free for 14 months. But after the seizures came back, so did MAJOR depression. The psychiatrist said I was Bipolar. And at that time my kids were in elementary school. So they went thru a lot too. They witnessed quite a few TC seizures. Thought their momma was going to die on several occasions. I wish they would never have seen some of the things they did.
Now that both of my kids are grown and on their own and folks ask what do I do, I tell them I'm still lookin' for a job. Cause this is as good as it gets for some.