Crystal11
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I just thought I would post about my migraines and Epilepsy and see how many people have similar troubles.
I take two medications for seizures: Keppra XR 3000mg and Lamictal XR 400mg a day. For Migraines, I take Butalbital (1-4 times a day as needed PRN).
I take two medications for allergies Veramyst and Epistat. So I take a collection of medications but some are PRN/as needed.
SO- last night and the day before I had a Migraine headache meaning that it lasted two days.
I took one Butalbital and don't like taking meds and try to keep it down to one pill until its not tolerable anymore. So I waited for the Butalbital to work and realized that it wasn't stopping the pain totally.
I was nauseous and not able to concentrate or eat or rest when it was already 3AM. I took another Butalbital which is a sedative and pain killer, waited and finally fell alseep. I was upset and wanted to cry.
The last time this happened, a more severe migraine, EMS came to get me as I sat in my closet, crying, so so sick, in severe pain and had already taken Pepto-Bismol, 2 Excedrin (can't tolerate) and had my seizure meds and had eaten dinner. I got a shot of Phenergan which I was allergic to.
Anyway, I told my roommate that I would rather have a seizure than a migraine since you're aware during a migraine and wish it would go away.
I have an iPhone and looked around and found a nice app for migraine and creating reports that a neuro can look at. Its easy to use and doesn't take a long time to enter data. After making a "report" you can see how many you had, and by answering 9 questions, it can produce a MIDAS score. This score is Migraine Disability Assesment Score which will tell you a number and this number is how severe or not the migraine impaired your daily life, or how much it interupted your life.
Does anyone out there notice an increase of migraines and also have Epilepsy
Does anyone out there notice their migraines increasing although they are on AEDs? (2 AEDs can be used for migraines)
What home treatment have you noticed that works and what medications do you use when it gets bad?
Just thought I would ask and see who all deal with similar issues. I know that Epilepsy and Migraines are co-morbid conditions in a lot of people.
My migraines started a few years ago in college- but I thought they were sinus headaches or related to stress. It would force me to sleep and for some reason, I craved sugar or candy, not chocolate, but things like mints or Jolly Ranchers to make the nausea or sickness more tolerable. I don't know why it helps but it does to some point.
Everyone take care
Crystal
I take two medications for seizures: Keppra XR 3000mg and Lamictal XR 400mg a day. For Migraines, I take Butalbital (1-4 times a day as needed PRN).
I take two medications for allergies Veramyst and Epistat. So I take a collection of medications but some are PRN/as needed.
SO- last night and the day before I had a Migraine headache meaning that it lasted two days.
I took one Butalbital and don't like taking meds and try to keep it down to one pill until its not tolerable anymore. So I waited for the Butalbital to work and realized that it wasn't stopping the pain totally.
I was nauseous and not able to concentrate or eat or rest when it was already 3AM. I took another Butalbital which is a sedative and pain killer, waited and finally fell alseep. I was upset and wanted to cry.
The last time this happened, a more severe migraine, EMS came to get me as I sat in my closet, crying, so so sick, in severe pain and had already taken Pepto-Bismol, 2 Excedrin (can't tolerate) and had my seizure meds and had eaten dinner. I got a shot of Phenergan which I was allergic to.
Anyway, I told my roommate that I would rather have a seizure than a migraine since you're aware during a migraine and wish it would go away.
I have an iPhone and looked around and found a nice app for migraine and creating reports that a neuro can look at. Its easy to use and doesn't take a long time to enter data. After making a "report" you can see how many you had, and by answering 9 questions, it can produce a MIDAS score. This score is Migraine Disability Assesment Score which will tell you a number and this number is how severe or not the migraine impaired your daily life, or how much it interupted your life.
Does anyone out there notice an increase of migraines and also have Epilepsy
Does anyone out there notice their migraines increasing although they are on AEDs? (2 AEDs can be used for migraines)
What home treatment have you noticed that works and what medications do you use when it gets bad?
Just thought I would ask and see who all deal with similar issues. I know that Epilepsy and Migraines are co-morbid conditions in a lot of people.
My migraines started a few years ago in college- but I thought they were sinus headaches or related to stress. It would force me to sleep and for some reason, I craved sugar or candy, not chocolate, but things like mints or Jolly Ranchers to make the nausea or sickness more tolerable. I don't know why it helps but it does to some point.
Everyone take care
Crystal