New doc new thoughts of what it is

[thornton8000]

So yesterday I go to a new neuro, and explain everything that's happned and how certain things cause me to have seizures. He does the normal grab my fingers and squeeze, looks into my eyes and makes me walk the room. And states not seizure, PNES, I'm almost certain you have , neuropathy, and either wilson diease, or devics diease, both of which do match my other symptoms.

So here i am unmedicated for the last 2 months, having issues a plenty, and never once did any of the past neuro's pick up that ok maybe this is something. (the 2 new dx's the neuro talked about have) seizures/ involntary movments that look like seizures im the symptoms for a dx.

So its been a whole lot of ups and downs but maybe just maybe this neuro may be able to figure out whats going on and give me a straight answer after all these years.

mike

 

[jayde-101]

.... im happy for the fact that you maybe finally getting some where ... that in itself must be a relief ?

its quite interesting that you have shared it with us all here ..

and for the fact that the other neuros havent picked up on it ... may purely be neurology is a vast and complex subject with many of sub catorgories .... for example you have the neuros that specialise in just epilepsy or just ms then you got the ones that deal with parkinsons and stuff like that so maybe this one that you have found specialisis in neropathy ?

i wish you all the best of luck keep up updated as to how it goes take care

 

[thornton8000]

Thanks Jayde-101
I always share new updates as I always get them since we've all ran the gauntlet at one point in time, and I'm now to the point it doesnt matter what it turns out to be I just want to know so it can be treated, and so i can maybe feel better in the long run

mike

 

[jayde-101]

This is so true ... You get to that point where you just want it sorted its true ... Then when you have the answers you can start to turn the tables on it and start getting your life back

When do you see the neuro again

 

[huskymom]

I am so glad that maybe you have found the right path to go down this time!

 

[thornton8000]

me also Huskymom

 

[Eli]

...So its been a whole lot of ups and downs but maybe just maybe this neuro may be able to figure out whats going on and give me a straight answer after all these years.

mike

Thank goodness, hope you get some informative feedback.

 

[jyearta]

It's great that you have found a Neur. that looks like to who is listening to you.

wishing the best .......:clap:

 

[Nakamova]

It's about time Mike! I hope this guy can help you get some answers and some relief. Keep us posted!