pnes

  1. I

    Testing Bethany

    Hi I just had my second VEEG and I am lost as what I should do when I was there I was ambivalent about the whole test, from the moment I got there they made me feel as if I were doing it for attention based of the last one 3 years ago . I am so upset it took me 3 yrs for another test and so...
  2. A

    PNES A difficult conversation worth having

    Psychogenic Non-Epileptic Seizures (PNES) Some basic references: http://www.epilepsy.com/article/2014/3/truth-about-psychogenic-nonepileptic-seizures http://www.ncbi.nlm.nih.gov/pmc/articles/PMC321215/ This is a CWE thread about the subject from 2007...
  3. I

    factitius seizures ( epilepsy) and neuro

    6 mo plus since I've seen neuro same dr , can you believe this shit they think it's a factitus disorder. Because of previous medical history , observations of kin and people who have called 911. previous test was inconclusive with pro.dia. PNES (Rant) Then after that this shit piss me off so...
  4. I

    Emergency service and ER

    :brain:Perplexing problems for me anyway I was out with friends and I had a series of seizures and more then one person called ems , questions . can they take you to the hospital if they think your malingering with out your being able to verbally consent? Why should they talk sh$t to you ...
  5. I

    Forced seizure treatment

    being forced to get a second opinion from a neurologist and/or epidemiologist , Would anyone force a family member to seek treatment or be institutionalized Or has it happen to some one you know or your self.
  6. T

    My mission is to help those with PNES

    Hello everyone, My name is John Dougherty and I am the spouse of someone who has successfully overcome most of her psychogenic nonepileptic seizures (PNES) causes by sexual abuse in childhood. PNES are often linked to trauma and PTSD and there are up to 500,000 people in the US alone who are...
  7. M

    I am so confused! :/

    I really need some help from you guys right now. This is my story short: years ago I started having different seizures. I was examined thoroughly (only because of one type of seizure because I didn't tell anyone about the others) but eeg, ct and whatever else I had came back clear and there...
  8. thornton8000

    New doc new thoughts of what it is

    So yesterday I go to a new neuro, and explain everything that's happned and how certain things cause me to have seizures. He does the normal grab my fingers and squeeze, looks into my eyes and makes me walk the room. And states not seizure, PNES, I'm almost certain you have , neuropathy, and...
  9. thornton8000

    back again

    hey friends! So the new neuro, decides since all my scans and tests are normal to have me go to a tlak doc who specializes in seizures and PNES, and since i show symptoms of seizures and possible MS he's wondering why the neuro isnt treating me better for the other symptoms and why hes...
  10. thornton8000

    Something different for me

    Hey all, Its been awhile since ive posted here. My neuro wants me to see a PNES doc on the 31st, even tho my seizure are about 80% controlled with my keppra, since my veeg was clear he thinks they are PNES, not any other form of seizures. But the part that is different for me is this afternoon...
  11. D

    Could this be partial seizures or non-epileptic events

    Hi. About year ago I was diagnosed with pseudoseizures when one afternoon I started convulsing and hallucinating after taking a few hits of cannabis. Nothing was wrong with the weed itself, as I smoked more of it the next day without any negative side effects. What was strange about the...
  12. thornton8000

    seizure update as promised

    12 days I have been seizure free! (night seizures) 22 days I have started my increased dose of keppra of 2000mgs daily and 22 days of deccreased dose of topamax of 100 mg daily so far on my longest seizure free stretch, hoping this keeps going! even through major bouts of depression i havent...
  13. Aleda

    Young and with history of (probably?) PNES seizures

    Hi there all! Sorry if these will be long. My name is quite difficult to pronounce, so you can just call me Aleda :woot: I'm from Poland, I'm 18 and I suffer from seizures for 2 years, but the problem about them is that I don't really know what kind of seizures they are and how to approach...
  14. JLogefeil

    This Might Help Peope Who Are Being Told They Are PNES??

    I notice a lot latley that there are more post being posted about people getting diagnosed with PNES. I have been diagnoised with it a few time and fighting with doc saying I don't think there PNES. I have been learning lots about what to say, what not to say, things to watch out for, sneaky...
  15. thornton8000

    Got a call about VEEG

    So I got a call about having a VEEG to be done, they didnt say anything to stop my meds they want to do a 3 hour VEEG I'm going to call them back on Monday the 4th the day before my 32nd birthday, I have my new neuro for a 2nd opinion set up on the 21st of june so I'm thinking I should wait...
  16. D

    What kind of seizures cause an aura followed by a loss of consciousness or falling as

    What kind of seizure could this be I get seizure/migraine auras (vision disturbances, derealization, numbness, nausea, occasional vomiting) followed by a intense urge to sleep. I usually end up losing consciousness during these episodes. My boyfriend frequently finds me asleep at my desk and...
  17. L

    Could I have PNES? (psychogenic nonepileptic seizures)

    Hey everyone :) Obviously, from the title, I'm trying to get your opinions an whether I could have PNES or not, before going to the doctor and sounding like a lunatic :) so here's a little background history on me: I was diagnosed with juvenile myoclonic epilepsy when I was 15. (20 now). That...
  18. J

    simple partials or PNES ? please help

    Hello, i am 45yr old male in a good health (well, sort of). For the last 10 yrs I have been suffering from seizure-like spells. This is how they manifest - out of nowhere (no triggers, usually when I am relaxed), I have a weird sensation in my head - hard to describe so I am not going to try. It...
  19. M

    epilepsy and PNES

    Anybody here with both types of seizures and how do you tell the difference?I read that pnes is a response to stress but does that mean it occurs at a stressful time or a day or week or month later.These new ones are like simple partials and Ive been under way more stress before and they turn on...
  20. M

    hyperventilation

    My first visit with Epi,his paper said EEG showed "abnormal III-awake,sleep,anterior temporal sharp wave consistent with dx of focal epilepsy arising from the left temporal region" My question-I have no idea if this was due to the hyperventilation or flashing lights or just because it was sleep...
Top