neuro

  1. TravisMN

    MN Neuro-Oncology symposium

    May 9th and 10th Minneapolis MN. Not strictly epilepsy, but quite detailed presentations relating to "neuro oncology"! I've been at the first two they had and it was professional level material. The parent/patient was a little watered down (for me) so I stuck with the raw medical presentation...
  2. G

    Hello :)

    Hello Everyone, I am new to the forums and am just reading through different stories in an effort to find something that might 'click' and help us to figure out what challenges my son is experiencing. I am the extremely lucky mother of a fantastic 14yo boy. He's bright, funny, and has a great...
  3. thornton8000

    New doc new thoughts of what it is

    So yesterday I go to a new neuro, and explain everything that's happned and how certain things cause me to have seizures. He does the normal grab my fingers and squeeze, looks into my eyes and makes me walk the room. And states not seizure, PNES, I'm almost certain you have , neuropathy, and...
  4. thornton8000

    doctors do they really understand?

    Hey all ltns :) I made sure to get the new neuros notes from my last 2 visits and everything i read shocked and appalled me. He thinks im faking or malingering (for some other gain) or its somatization, he sent me to a neuropysch doc who deal with PNES cases and im still waiting on getting his...
  5. C

    Pre-irritated: neuro appt. today

    :soap:I have been continuing to have autonomic partial seizures. I see my neuro at 1:00 p.m. today. I am on Lamictal 300 mg, and my Mom and I were able to stop a generalized tonic-clonic seizure with Valium over the weekend. As most of us know, the neuros are hesitant about prescribing Valium...
  6. JLogefeil

    Going To My Neuro Appointment Tomorrow?

    I m nervous about going to my neuro appointment. Last time I went he uped my dose, he told me he was going to up my dose after he said "you shouldn't be having seizures if your on AED". I honestly didn't know how to reply to that. I don't know if he knows I was in the hospital twice since I...
  7. thornton8000

    ok new update finally cracked lol

    Hey gang! So I am seeing a MS neuro, as many of you know i cannot due a 5 day or more veeg and i told the epi doc that it is out of the question as i dont have daycare. So after losing my neuro that i was seeing i had to find a new that wll hopefully try and help me figure out what is truly...
  8. thornton8000

    got a start of another dx from the spinal doc

    Hey all here's a update since its been a long time since I've been on. I went to the spinal doc and they told me that i have chronic pain syndrome and if the doctors or neuro, will look into it more it could be one of many differnt things. 1) fibro 2) chronic fatigue syndrome added onto it 3)...
  9. thornton8000

    another night seizure and hit my head

    Hello everyone! So I had A night seizure that I woke up to this morning, and when I combed my hair and when I got to the righ side it was tender to any kind of pressure, I mean any, already had a migraine, back was sore, been walking around in a fog, been out of it, sore body, had urination...
  10. thornton8000

    Thank you!

    Thanks to everyone who suggested a 2nd opinion! I just got a letter in the mail today stating my old neuro is leaving the clinic he was working at, so it was a good choice to get that 2nd opinion, (now it makes me wonder if I was to much work for him and was part of his choice to leave! :) lol)...
  11. thornton8000

    worried about tomorrow

    had a minor seizure last night, lasted about 5 seconds @ 930pm gave me a minor migraine woke up this morning had a wicked migraine and is now a dull throb but is still bugging the heck outta me, my back is still hurting me, my head is still fuzzy and after everything I've been through with neuro...
  12. thornton8000

    electric snapping next right eye

    Last night night I had a new feeling 10 pops of electric "current" next to my right eye, and started grinding my teeth last night in my sleep which is something I normally dont do either, so more things that go into my journal, and going to be brought up to my neuro today when I talk to him. Any...
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