Suggestion for VEEG, EMU?

Matthew74

Stalwart
Messages
592
Reaction score
23
Points
93
Since a couple of you are, or were, in monitoring, do you have any suggestions or insights for making it comfortable? (Beyond the most obvious stuff.) I'm going in next week.
 
Messages
77
Reaction score
0
Points
0
Bring your electronics (iPad, iPhone, laptop) you can use them on wifi, but not hold them while they are charging. By have all of them, I could charge one and use the other, etc.
 

Ruth

New
Messages
3,025
Reaction score
0
Points
0
Matthew, I have never had a VEEG or EMU. What do they involve? Most tests that I have, you just lie down and relax. The technologist does all of the work.

Wouldn't personal electronics intevere with the test?

I hope all goes well with the test. Let us know what happens.
 

smilemily

New
Messages
17
Reaction score
0
Points
0
Hi Matthew74,
I was just in an EMU. I brought my laptop and got the free trial month of Netflix so that helped to pass time. Bring books to read or a little craft to do. They make "grown-up" coloring books that pass the time. See if anyone can come visit you- just an hour of playing cards or talking helps to pass the time. If not, maybe you can Skype or Facetime them.
I do not know where your EMU is but when I went I had neuropsych testing that tok up an entire day.

Wishing you all the best!
Contact me if you need anything else.
Emily
 

Topcat

Stalwart
Messages
380
Reaction score
12
Points
68
Personally I couldn't use my laptop strapped down to a table. I hated the entire experience.
 

Matthew74

Stalwart
Messages
592
Reaction score
23
Points
93
Matthew, I have never had a VEEG or EMU. What do they involve?

Ruth, That's when they put you on EEG and video in the hospital for a week. They take you off your meds and try to record a seizure. You probably knew that.
 
Last edited:

Matthew74

Stalwart
Messages
592
Reaction score
23
Points
93
Emily: Netflix and coloring books are an awesome idea! I have a huge Crayola set I got from my sister somewhere in a box (I think). Never used it. Now if I only knew where it was... I know where my Dad's slide rule is, but that doesn't seem to help.

TopCat: "Personally I couldn't use my laptop strapped down to a table. I hated the entire experience." LOL. Somehow you manage to express so much, so vividly, in so few words.
 
Last edited:

Ruth

New
Messages
3,025
Reaction score
0
Points
0
Ruth, That's when they put you on EEG and video in the hospital for a week. They take you off your meds and try to record a seizure. You probably knew that.

Actually I did not know that. Thank you for the info. Now, I know why they have never given me a VEEG. I get status seizures. I would go into one. By By Ruth, if I have one.
 

Pricilla

New
Messages
55
Reaction score
0
Points
0
Since a couple of you are, or were, in monitoring, do you have any suggestions or insights for making it comfortable? (Beyond the most obvious stuff.) I'm going in next week.

*insert dramatic music*
I'm going in next week for a veeg too!!!!! The dread, anxiety, all that is coming forth. good luck! i hope you have activity and your stay is short :)
 

Matthew74

Stalwart
Messages
592
Reaction score
23
Points
93
Pricilla:

I'm starting Friday. We can have a contest to see who has the first full-on seizure (from their start date). :pop:

- Matthew
 
Messages
77
Reaction score
0
Points
0
TopCat, were you really strapped down? That's horrible. In bed, yes I was. padded side rails, and all that. But certainly not strapped down. My goodness. That sounds barbaric.
 

Ruth

New
Messages
3,025
Reaction score
0
Points
0
Personally I couldn't use my laptop strapped down to a table. I hated the entire experience.

I think it was the laptop that was strapped down to a table. I do not think that Topcat was strapped down. They do not do that to patients.
 

Topcat

Stalwart
Messages
380
Reaction score
12
Points
68
NO I was strapped down to some kind of table. I didn't see the necessity of this at all. Maybe if my neurologist had explained the procedure in advance I would have been more prepared. I don't know why they are so concerned that a person might fall down heck as any one who has Tonic-clonic seizures knows that's just part of life.
 
Messages
77
Reaction score
0
Points
0
Oh, Topcat, I'm so sorry. That really does sound simply barbaric, retro to the 1940's mental health type stuff. How long ago did you have the veeg? At the least I hope the monitoring gave you and your doc some VERY useful data.

Susan
 

Topcat

Stalwart
Messages
380
Reaction score
12
Points
68
I only needed to be there one night because I kind of freaked out and kept having seizures they got a lot of information.
You might want to ask your neurologist if you can have an in home ambulatory EEG.
 

Matthew74

Stalwart
Messages
592
Reaction score
23
Points
93
Sorry I misunderstood. I thought you meant the laptop. Strapped to a table? That's not funny, I'd hate that too.

The Mayo video for Jacksonville shows a belt they put around your waist in bed. I didn't like that, especially coming off of back surgery. I imagine its supposed to keep you from wandering off in a complex partial, but it struck me wrong too. I'll give it a full write up.
 

Ruth

New
Messages
3,025
Reaction score
0
Points
0
NO I was strapped down to some kind of table.

I have never been strapped down for any procedures. My first one was in 1949.

That is barbaric and uncalled for by your doctor.

I am so sorry that you had to go through that.
 
Top