dilantin

  1. I

    Phenytoin and Carbamezapine combination therapy

    Hello everyone. New to the forum. Just wanted to know if there is anyone out there that has ever changed their medication from phenytoin /dilantin to carbamezepine/tegretol and if so how was their experience. I have been on phenytoin for 9 years straight but after some breakthrough seizures we...
  2. C

    Is Keppra XR causing my symptoms?

    I'm switching from Dilantin to Keppra XR. I'm currently on 1500 mg of KeppraXR and 350 mg of Dilantin. I see my neurologist in 4 days to see how I'm tolerating KeppraXR and hopefully start to decrease the Dilantin dose. Ever since I've reached the higher dosage of Keppra I've felt super...
  3. C

    Migraines vs Partials

    Hello, I hope Bernard will allow me to post this new thread. I still don't have my email problem fixed with Comcast but I hope to get to that sometime this week. As you may know, I've been asking for guidance here concerning my developmentally disabled adult son who suffered from 2 tonic...
  4. H

    Switching meds Dilantin to generic keppra...new here please help me understand whyyyy

    Been diagnosed since 16 with juvenile myoclonic epilepsy. Had my first seizure in my sleep at 12 yrs old during a bad dream about a husky dog coming at me. Scary for a 12 yr old believe me :( so finally at 16 after my 4th seizure I was diagnosed with epilepsy. They gave me depakote and wow over...
  5. S

    New to forum-GrandMal seizures and med change to Keppra

    I have been on dilantin for grand mal seizures in upwards of 30 years. been very fortunate all these years that my seizures were very well controlled with Dilantin, and whenever they did occur, were only during sleep. So as life is grand I was thrown a loop and had a grand mal seizure a week ago...
  6. Candice.Brittney

    New to Seizures...

    My name is Candice, I'm a 25 year old girl living in Windsor, Ontario Canada. I'm the loving Mother to a Gorgeous 3 1/2 year old Little Girl who's name is Nova. She is my world. In late July of 2012 I remember standing in the bathroom staring in the mirror brushing my teeth. Next thing I knew...
  7. T

    Epilepsy after TBI

    Hello - my husband has epilepsy as a result of a TBI and brain surgery. He had one gran mal seizure 10 months after the TBI (the dilantin wasn't at a theraputic level). Since last May, he's been on Lamictal XR 300 mg and Dilantin 550 mg a day. Suspect the meds are causing many of the...
  8. T

    Husband has TBI caused Epilepsy

    Hi - My husband had a fall in June 2011, suffered a TBI, had brain surgery, yada, yada, yada. Put on Dilantin as standard procedure, but never at a theraputic blood level. May 2012 had gran mal seizure. 10 days in hospital for 24/7 eeg. One seizure induced while there. Fun time. Increased...
  9. M

    Newly diagnosed with Tonic-Clonic Seizures, kind of scared

    Hello, I am new to the forum, and would like some insight. I have only had 3 seizures, although all 3 were pretty severe they were spread with 12 or more month intervals, with the most recent only a week ago. The first two were pretty much swept to the side, with no diagnosis or treatment after...
  10. K

    general question about meds & shot

    Hi, I was just wondering if anyone, with having to go to ER, recieved a shot of Epilepsy meds (Dilantin) and had a red swollen wrist and hand? I got a shot and my hand and wrist have been red and swollen since last Tuesday so I was just wondering. I certainly hope it's not some weird infection...
  11. K

    Dilantin - itching?

    Hi, I was just wondering if anyone has noticed a lot of itching since taking Dilantin? Been taking for a week and starting to itch bad! Thank you for any info! Kim
  12. K

    One time seizure.. sleep and meds?

    4 months ago while sleeping I had a seizure, the bed shook woke up my boyfriend, I was unconscious for at least 30 minutes. Saw the doctor they found a small 'calcium deposit' brain tumor. Not sure if this is the cause of the seizure or not, it's not large enough to need to remove I am just...
  13. W

    New here

    Hi all! Does anyone have experience with seizures caused by high blood sugar? I've had epilepsy since age 4 and been on Dilantin since 1985. Recently discovered that my blood sugar is out of whack, and probably has been for a long, long time. At this point I don't know if it's the dilantin...
  14. P

    [Research] Dilantin – Hero or Horror?

    Dilantin (Phenytoin) can be considered the grandfather of all epilepsy medications. Although it was invented in 1908 as a chemical that could prevent convulsions during electroshock treatment, its popularity grew quickly, and as early as 1940, it was hailed as initiating a whole new epoch of...
  15. L

    Am I Overreacting? Tight/Sore Jaw

    Hi all, I am driving myself batty with over-thinking, over-worrying, wondering, "Is this normal/med related/whatever???" over every little sensation I feel these days. I had an episode yesterday with a series of fainting/mini-seizures. The ER docs said my Dilantin levels were low, and I'd been...
  16. L

    Side Effects: Migraines?

    Hi all, I'm new to the forum, just seeking some support as I just had my first ever episode 2 weeks ago. I had a series of small seizures (4 total) in one day, spent 12 hours in the ER getting tests done. MRI, Cat Scan, blood tests, etc all came back normal, but my EEG showed some abnormal...
  17. Endless

    Bone Density, Teeth, and AED's

    I had my bone density tested today. One of the questions on the questionnaire was if I was on AED's, and if so, which one(s) and for how long. Are AED's bad for bone health? I also saw people say in a few posts they thought that Topamax had been hard on their teeth. Is extra calcium a good...
  18. P

    Epilepsy, anxiety and depression

    Getting diagnosed with epilepsy is depressing enough. As is suffering through the consequences. And the sheer anxiety of not knowing how and when a seizure can occur can occur can be crippling in itself. Will it be in school, at a party, while you’re showering, eating, walking down stairs, or...
  19. R

    Dilantin side effects

    I have been taking dilantin for 25 years. For the past 2 years I have been having side effects that were getting progressively worse. My dilantin blood level had gone toxic but is now back to normal. However, the most serious side effects-neuropathy & concentration issues- are taking their time...
  20. N

    Dilantin and Immune System

    I would like to know what is the best way to keep the immune system strong while taking dilantin. Dilantin has an impact on the immune system over time. Thanks
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