vns

  1. Birdbomb

    VNS Message Board

    The VNS Message Board has been on the move this weekend. I have now reached total independence and OWN the dang thing instead of relying on InvisionFree for the freebie. (this really means I have to now pay monthly server fees! =( Hey Bernard about that advertising.....) We are ALMOST ready...
  2. Birdbomb

    [News] VNS & Depression Investigation

    Feb 15th 2010 I will post link to the webcast This is gonna be HUGE! Stay tuned......... http://z4.invisionfree.com/VNS_Message_Board/index.php?showtopic=3737
  3. kimberlymeg

    VNS Therapy?

    If you read my info you can see my frustration with medicine. I would honestly like to try just the VNS therapy w/out medication and see if it helped me. The most frequent I have ever had seizures is one every 1-2 months. After getting off medicine a second time at the age of 18, the side...
  4. J

    Next Steps

    I have tonic-clonic seizures since 16 which were mostly controlled by meds for several years. Switched meds in 2006 after some breakthrough seizures, from carbatrol to keppra to lamictal, which finally worked (though it brought with it increased insomnia and lovely migraines). Now I'm starting...
  5. chinchillachic18

    Vagus Nerve Stimulator

    Anybody have one? How does it work and has it worked for you?
  6. walksalot

    I can tell this topic isn't new, but I'm new to this forum

    I'm 64 and I've had seizures since I was 24, from a head injury. Among many drugs, I've taken phenobarbitol and dilantin Depakote, Tegretol, Lamictal, Topamax, etc. I even took several of the now brand names when they were investigational drugs at the Ohio State University Neurological...
  7. Bernard

    Don't become a victim of medical marketing

    Following up on http://www.coping-with-epilepsy.com/forums/f22/pharmaceutical-profits-come-before-consumer-wellness-819/ and http://www.coping-with-epilepsy.com/forums/f23/doctors-not-immune-sales-pitches-716/ comes the natural extension from CNN... Don't become a victim of medical marketing
  8. Birdbomb

    FDA Alert re CT Scans & Implanted Medical Devices

    FDA Preliminary1 Public Health Notification: Possible Malfunction of Electronic Medical Devices Caused by Computed Tomography (CT) Scanning Date July 14, 2008 Dear Healthcare Professional: This is to alert you to the possibility that the x-rays used during CT examinations may cause some...
  9. xenome

    Alcohol and epilepsy

    Im a social drinker. I drink with my friends on the weekends. When I asked my neuro if that was ok, she said that it was as long as I didnt drink around the same time that I took my meds (Keppra and Depakote). She said that those drugs and alcohol both depress the nervous system, so taking them...
  10. lovies10323

    Vns

    Hello everyone! :) I had trouble figuring out how to post a new topic, but I am hoping I did it right!! LOL! I just got the VNS surgery done on June 3rd! I am so happy I got it! I just wanted to see if there was anyone else on here that has had the surgery and talk about somethings.... Thanks, Dawn
  11. K

    Still seizure free -VNS

    Hi all. Haven't been on in a week or so, but was asked in one of the other threads to keep posted on jessica's progress. Well, Jess is now 4 - and also 56 days SEIZURE FREE!!!!!!!! She is doing so good! Her walking and vocal have been improving daily, she is still so alert and happy, it is...
  12. K

    VNS anyone?

    Hello - i am new here. My daughter Jess, who is almost 4 now, has been having every kind of seizure, including A Typical Infantile Spasms, since she was 3 months old. Her MRI's, CT Scans etc are all normal - Her EEG's on the other hand are not. Her seizures do not originate from any one area...
  13. Bernard

    Am I out of line? epilepsy.com members say so...

    Hey folks, :soap: it appears that I have upset a few people over at epilepsy.com over a discussion on the VNS: VNS resource discussion out of context quote pile on Bernard thread Am I out of line? Do I need to be flogged with a wet noodle?
  14. T

    VNS vs. neuropace

    i just spent a week in the hospital hooked up to an eeg machine. after that we are now looking at the VNS. we had originally thought about neuropace. but my seizures spread to fast and with what i have been through so far it is extremely hard to find the orgin. if anyone knows anything about...
  15. kirk267

    Trying to decide if I want Vagal Nerve Stimulator Surgery!

    Hi how are you all doing? I just had an appointment with my neurologist and he suggested I get Vagal Nerve Stimulator Surgery (VNS). I've used google to search for websites to do with VNS and have read alot of the information about VNS on how it treats not only seizures but also depression...
  16. Birdbomb

    Bye-Bye VNS!

    In Sept 02 I had a VNS implanted for the treatment of epilepsy. To say I suffered from many undesirable side effects would be a gross understatement. As the settings were increased and adjusted, the number of side effects increased too. Up until Dec 26, 03, I tolerated these side effects but...
  17. Bernard

    Ten must-ask questions about joining a clinical trial

    The ten questions (read the article for more details about the questions):What is the end point of the trial?Who is running the trial, and what are their credentials?What are the risks and possible side effects of the experimental therapy?How long will I be participating, and can I stop if I...
  18. M

    VNS Implant

    I need to know if someone know if a person gain weight, the communication of the stimulator and the programming wand will be affected? My daughther's VNS implant is giving difficulties to connect with the computer. The VNS is under the muscle. Thanks. Mari
  19. Bernard

    Is VNS Therapy a crude form of EEG Neurofeedback?

    Researchers at the Medical University of South Carolina (MUSC) announced the results of a 9 person functional MRI (fMRI) study examining the effects of VNS (Vagus Nerve Stimulation) Therapy for patients with severe depression which appears in the August 2007 issue of Neuropsychopharmacology...
  20. BIGMAN131307

    Epilepsy Videos (some **Graphic**)

    These videos contain graphic scenes of real medical procedures for Epilepsy and other associated medical problems. If you are faint of heart, or don't like the sight of blood, Don't View Them !! This is your last chance to surf away. **Note** If you get a message of no embedding blah, blah...
Back
Top Bottom