Diary of an Epileptic

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

Agreed! It's all in jest, we don't endorse rule-breaking.

*** Kids, don't try this at home! ***
 
So, yeah
I made chicken ala king last night. Not Gluten Free. havent really felt any different. yet.
 
occb said:
How about Ida Noe? That way, regardless of your post-ictal state, you can always answer the question, "what's your name?"
Click to expand...

I always find that question amusing!
I was adopted when I was 4 and had my name changed. I have worked in an industry that requires me to have a "phone name" since I was 16, changing with each company I worked at. Most people know me by my nickname and I have always responded better to it than my "real" name.
So coming out of a seizure and being asked my name is kinda like asking me to receit the castmembers of Star Trek (which would probably be easier:roflmao:)
 
seizingbeauty said:
I always find that question amusing!
I was adopted when I was 4 and had my name changed. I have worked in an industry that requires me to have a "phone name" since I was 16, changing with each company I worked at. Most people know me by my nickname and I have always responded better to it than my "real" name.
So coming out of a seizure and being asked my name is kinda like asking me to receit the castmembers of Star Trek (which would probably be easier:roflmao:)
Click to expand...

HAHAHA! True!

On both counts! I'm more likely to answer to my nickname than my real name - more people use it! :roflmao:
 
One minute tonic clonic at approx. 6:00pm.

Short and sweet chad said. That resets the clock.

I am so hungry and my tongue hurts. Not sure why I am always starved after. and I want Kraft Dinner and Hot Dogs of all things! Carbs Carbs Carbs!
 
So sorry kiddo. Any guesses as to why. Going back to gluten? It being Thursday?
 
Not sure.
I felt tired today at worked. Fed up with a co-workers attitude. I was this close to snapping at him. and I didnt eat lunch today. and I ate a breakfast sandwich from Tim Horton's this morning. *Timmy's is like a Dunkin Donuts type thing. and the breakfast sandwich is egg, cheese, bacon on a tea biscuit*

I had a full caffiene coffee this morning. First time in a while. I was having cold moment and hot moments all day, becuase the guys in the back shop kept opening the garage door for an hour at a time.

I dont know. I dont feel bad, but I dont feel great. Kind of in "feeling limbo". Im drinking lemonade. kinda, its basically water with lemon juice and sugar. not that powder crap.
 
My recommendation would be to try not to skip lunch -- even if you just have a handful of nuts or a banana -- try and get something in...
 
I suppose.
I dont know, some days I just dont like to eat. I love food, I like the way it tastes, Im not worried about being/becoming fat. I just dont like to eat. I think its the feeling in my stomach I dont like. I prefer the hungry feeling over the full feeling. I dont know why. having food in my tummy makes it upset and yucky
 
I know the feeling you're talking about. I used to always skip breakfast, I couldn't understand how other people ate it. But once I figured out how that affected me later in the day, I learned to eat it. Even something tiny -- some grapes, crackers...
 
Rae1889 said:
I suppose.
I dont know, some days I just dont like to eat. I love food, I like the way it tastes, Im not worried about being/becoming fat. I just dont like to eat. I think its the feeling in my stomach I dont like. I prefer the hungry feeling over the full feeling. I dont know why. having food in my tummy makes it upset and yucky
Click to expand...

I feel the same way sometimes. I am learning to eat more regular meals, but it's a hard habit to break; the not eating all day thing. :/
 
To be honest if it wasn't for Kurt I would forget to eat at all. I don't seem to get the hungry feeling the same way other people do. And I agree with not liking the FULL feeling, makes me nauseous.
 
granted, I dont like the hungry feeling where it is so intense you wanna faint or barf, but I just like it empty. it takes me a long time to feel hungry too.
 
seizingbeauty said:
To be honest if it wasn't for Kurt I would forget to eat at all. I don't seem to get the hungry feeling the same way other people do. And I agree with not liking the FULL feeling, makes me nauseous.
Click to expand...

I have a terrible habit of forgetting to eat! Oh man, I feel so much better knowing I'm not the only one! I'll go all day and get busy doing stuff and then get a headache at 9pm and go "hey, did I eat today?"

But yeah, I don't get that "omg, I'm starving" feeling really. And I don't eat much even when I am starving...and I hate being "full." Like you guys, it makes me feel sick to my stomach and just...ugh.
 
Hey Rae!

Just wanted to check in and say hello. I haven't been around here in a while, because honestly my wife has been doing really well with her control thanks to Keppra. It's now been probably close to a year for her seizure free.

Her mental health, well, we're still working on that one. Her depression has been better, but the Keppra aggrivates her anxiety so her doctor is trying to figure out what she can do about that. Probably another specialist to add to the list.

They did find that her thyroid is hypo so they started her on some thyroid medication. To me it sounds sort of like the piece that might help to fill in the puzzle. When I read the symptoms of an undersactive thyroid it's like reading a book of my/her life for the past year or so. Could also contribute to the seizures I'm sure.

I see you're starting on a new medication. Good luck with it, perhaps it will be the change you needed. If not, you can always try another. Just don't ever give up. If you ever need some advice or support, feel free to get in touch with me via PM's.
 
Yeesh! how did I miss this yesterday and today? Happy day that your t/c was a short one, and you didn't feel to badly after. How were you feeling today?
 
another tonic clonic yesterday. thats 2 in less than a week. not fun. I dont know what caused this, but I have a feeling that its the fact that I havent stuck to gluten free diet anymore.

I have an appointment with my neuro today at 2:15. *its 10:15 now* so I can ask him a few questions. get the results back from my latest EEG.

I'd like to know his opinion on Dilantin as well as if I can set up a take home EEG. cuz I couldnt sleep, and I dont want to do the whole hospital one again. pointless. the results will be the same. Me not sleeping, equals not the information they are looking for.

I do have another question that I am going to post in another thread about hair loss.
 
Might be talking out of my "behind", but is it possible that going on and off the diet is like going on and off your meds?
I really hope you feel better soon! I know back to back seizures take the life out of me.
 
It could also be that Dilantin isn't working I would think. That or going off the Lamictal that quickly might be causing it. My thoughts anyway.
 
All things that i should consider.

Havent seen you around for a bit darcness, welcome back.

My neuro appointment with Dr. Fast was strange as usual.

He was an hour late. then we talked about me changing over to dilantin. He wants me to start a specific seizure diary with this med. noting any changes in hair or teeth. he also said I need to set up with a dentist to see if my mouth/teeth/gums are okay to be on this med. he says lots of people have gum/tooth sensitivity. I told him I always have sensitive teeth so he wants me to get checked out to see. If the dentist say that I should be on it to save my mouth, then he says we will try tegretol.

I forgot to ask about my EEG results, but I will next time. I see him again on April 26th, at 11:15.
 
You must log in or register to reply here.
Back
Top Bottom